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Thread: A documentary program in Holland about Fetal and CDH surgery

  1. #1

    A documentary program in Holland about Fetal and CDH surgery

    Here is a link of a documentary that called Intensive Care;

    http://www.eo.nl/programma/intensive...aflid=10193618
    It's about Intensive Care units of the hospitals in Holland.
    This video is about Fetal Surgery in a hospital in Belgium (Leuven)
    Next tuesday they show us a Diafragmatic Hernia surgery.
    I will also post the link here.
    It's in Dutch! but you will understand as you see the video's.
    It's an awareness and i found it very interesting..

    Thank you! Love Miriam
    Mommy of Sade Born 12-07-08 Diagnosed at 21 weeks gestationion. Polyhydramnios. Day 1 vent oscilator- day 2 ECMO. LCDH goretex repair on ECMO (she had no left diaphragma at all) on the 4th day of her life- stomach-bowel and spleen up. 5 days on ECMO during ECMO a cranial bleeding in the small cerebellum. Developed chylothorax after surgery (treated and solved with octreotide)and hydrocephalus after cranial bleeding.1 day on the infant flow- vent for 38 days 12 days NO2- Sildenafil (viagra) and Milrinone. Sade lost her battle with CHD after 40 days NICU on 20-08-2008 because the dokters could not treat her anymore caused to her high pulmonale hypertention and brain injurie. http://3.bp.blogspot.com/_r6I83gw3Mq...A/s320/S18.jpg http://sadehemmekam.blogspot.com

  2. #2
    I also found it interesting.
    Thanks for sharing.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  3. #3
    Thanks for sharing

  4. #4
    Senior Member
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    thanks for sharing!!!!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  5. #5
    Thanks Miriam! I can't wait to watch the CDH surgery video!
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)

  6. #6
    The CDH surgery of little girl Philleine who is still in a critical situation.
    Please pray for them.

    http://www.eo.nl/programma/intensive...aflid=10214266
    Mommy of Sade Born 12-07-08 Diagnosed at 21 weeks gestationion. Polyhydramnios. Day 1 vent oscilator- day 2 ECMO. LCDH goretex repair on ECMO (she had no left diaphragma at all) on the 4th day of her life- stomach-bowel and spleen up. 5 days on ECMO during ECMO a cranial bleeding in the small cerebellum. Developed chylothorax after surgery (treated and solved with octreotide)and hydrocephalus after cranial bleeding.1 day on the infant flow- vent for 38 days 12 days NO2- Sildenafil (viagra) and Milrinone. Sade lost her battle with CHD after 40 days NICU on 20-08-2008 because the dokters could not treat her anymore caused to her high pulmonale hypertention and brain injurie. http://3.bp.blogspot.com/_r6I83gw3Mq...A/s320/S18.jpg http://sadehemmekam.blogspot.com

  7. #7
    Prayers for the family and for Philleine.
    Watching this brings back so many memories.
    It breaks my heart that we have all been affected by this horrible birth defect.

    I feel so Blessed to have you all in my life.
    No one should walk this CDH journey alone.

    Thanks Miriam for sharing this video.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  8. #8
    That was very tough to watch. Thank you for posting it Miriam I will be praying fo rthe family.

    I just love seeing Sade's - she makes me smile every time I look at one of your posts
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

  9. #9
    Thanks For sharing. Many prayers for this family

  10. #10
    I very sad to say that this little girl had lost her battle on 02-22

    She was a very little brave babygirl! rest in peace Phileine...
    Mommy of Sade Born 12-07-08 Diagnosed at 21 weeks gestationion. Polyhydramnios. Day 1 vent oscilator- day 2 ECMO. LCDH goretex repair on ECMO (she had no left diaphragma at all) on the 4th day of her life- stomach-bowel and spleen up. 5 days on ECMO during ECMO a cranial bleeding in the small cerebellum. Developed chylothorax after surgery (treated and solved with octreotide)and hydrocephalus after cranial bleeding.1 day on the infant flow- vent for 38 days 12 days NO2- Sildenafil (viagra) and Milrinone. Sade lost her battle with CHD after 40 days NICU on 20-08-2008 because the dokters could not treat her anymore caused to her high pulmonale hypertention and brain injurie. http://3.bp.blogspot.com/_r6I83gw3Mq...A/s320/S18.jpg http://sadehemmekam.blogspot.com

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