Day of Prayer & Education for CDH - May 17, 2009

[LynneB]

I have heard great things about sick kids. I will find out where she is from in Toronto. Where did you buy sticker paper and how much was it?

[LynneB]

I have heard great things about sick kids. I will find out where she is from in Toronto. Where did you buy sticker paper and how much was it?

[mskelly]

Sick Kids' is a miraculous place and we are so blessed that Landon had his care there. I haven't picked up any sticker paper yet, but I looked on the Avery site to see if they made round labels, that's how I found out. I'm going to call some office supply stores to see if they have anything. I live out in the boonies If all else fails I'll see if I can get some off ebay! lol

[LynneB]

Oh my! I looked on some office supply websites and no luck yet, but we every store you can think of within 20 mins of my house.

[LynneB]

I spoke in our church's Traditional Service this morning for the day of Prayer and Education and Baer's DVD was shown in our LIVE Service. We had to do it this week due to next week being too full at church. Here is copy from the bulletin. I still want to post Baer's video but I am trouble with it just streaming on You Tube and starting from the begining showing a "play " button and of course you can't push play on You Tube. Help! Anybody got any ideas of what I can do?

[Dawn Torrence Ireland]

LOVE it, Lynne!!!!!

Love Baer's new photo too, that is too darn cute!!!

[LynneB]

Thanks Dawn! If all goes well, we will see you this Sunday!

[LynneB]

How sis everyone's day go? Would love to hear what you guys did!

[mskelly]

It was great! We all went to church, this is only Landon's 3rd time (Thanksgiving for Baptism, Easter and yesterday) and he was amazing...loved the singing and the big lights and fans on the ceiling! He fell asleep about half way through. The girls and I had made a big poster about CDH that we put up and as I spoke at the front the girls handed out our CDH stickers to everyone (the congregation loved this) We asked them to wear their stickers and educate at least one other person about CDH. There were gasps when I talked about how common CDH is, and the survival rate of only 50%. Most of the congregation knew Landon had been ill, but they didn't know what it was or the severity of the condition. Many people came up to us afterward and thanked us for speaking and sharing our story. They had no idea the depth of Landon's Journey. We also sent out an email to our family and friends explaining the day and asked them to forward it to one person to educate them on CDH and lit some candles at 7pm and prayed for our CDH community. It was a wonderful day.

[PennyCampsey]

IF i could figure out how to get our bulletin scanned I would Info was included in our church bulletin and read aloud, info about CDH , statistics, etc. AND THAT COLE IS A CDH SURVIVOR! Many people found out about CDH and were very shocked to learn the stats. The flowers we donated also were gorgeous ! our computer is down so we will get a pic on here as soon as it's up and running LOL!