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Thread: Day of Prayer & Education for CDH - May 17, 2009

  1. #21
    ALL set for this at my CHURCH :0)

  2. #22
    How oo we go about getting our church to participate? I need to get the ball rolling!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  3. #23
    Lynne, I just sent an email to our minister explaining what we'd like to do and asked how we would go about arranging it. We're getting a handout together for the bulletin as well as some slides for our overhead projector. We have a sharing time at the beginning of our church service, so I can get up and explain what the day is about. I also thought about doing up stickers with Landon's awareness ribbon on it to hand out at the door and people could wear them. (If I could afford buttons, I'd do that) I thought this way people are bound to leave wearing them and have someone else ask them what they're about. I just took the idea and ran with it...I don't think there's a right or wrong.
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email

  4. #24
    How can I do awarness stickers?
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  5. #25
    I am all set at my church too! We have some other things going on that day so we will be doing this on Sunday, May 10th if this alright. This is Mother's Day. I can get the only Ministry Moment on that day. I figure any time to spread awareness is a good time!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  6. #26
    Anytime is fine, Lynne!!!!

    WTG everyone!!!!! We're having an NC picnic on that day and a balloon release at the park.

    Plus, everyone please light candles at 7:00 pm in your time zone and say a prayer (or wishes)... that way we can have it continuously going around the world for 24 hours.

    And PLEASE post this to your blogs and sites to get more people involved!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  7. #27
    Lynne, I was just going to use Avery round labels and print them at home.
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email

  8. #28
    Lynne, I was just going to use Avery round labels and print them at home.
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email

  9. #29
    Sounds good Shana! I need to get a ribbon. I emailed for one so hopefully I will get it soon. Where are you from in ON? My BFF is from Toronto.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  10. #30
    I'm in Bobcaygeon, 2 hrs northeast of Toronto. Toronton's where we have to go for Landon's Sick Kids' check-ups.
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email

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