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A very good friend of mine is organizing a 5k Run called "For Grayton's Glory" on her Birthday May 9, 2009. All proceeds will benefit CHERUBS. Do any of you have any suggestions/helpful advice for me regarding T Shirts, Sponsor Levels, CDH information, etc?
Thanks!
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!bowel- liver- small intestines up with gortex repair had her repair while on ECMO on ECMO for 44 days (her entire life) Nitrate for 30- vent for 34 days- oscilator for 10 days Our Blog: www.thecreekbaums.blogspot.com
LOVE the name, Leigh!!!!
Shirts... you can order some with Grayton's ribbon through cafepress. CDH info... take all the info from the site you need and if you need more, let me know!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
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This is awesome Leigh!! I hope the 5K is a success....Grayton is so proud of her mom. I wish I could help with suggestions/advice, but haven't done much awareness events yet, but there are tons of others who will offer up their help, I am sure.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
That is awesome! I'm sure it will be a huge success!
My advice for T-shirts and other products, especially if you need a lot is vistaprint.com Not to take away from cafepress, b/c their products are GREAT, but vistaprint is very inexpensive. For the bowl-a-thon I got the t-shirts for $4.50 each. You can also get stuff like magnets, banners, yard signs, etc... A lot of the time they run specials where you can get stuff for free or very cheap with their promotional email sales they send out. Sign up for their emails and they will start sending you their promotional deals. Let me know if you need help!
I would definitely bring some CHERUBS brochures and maybe get one of the new informational posters Dawn created.
Let me know if there is anything that I can do from afar
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
Corin is right, Vista print is a great idea to do more personalized shirts. I am meeting with a lady this weekend who is holding a 5k run, I can let you kow what kinds of things she is doing. She was talking about getting a hold of the US field and track something or other to register the run? I will let you know.
Can't wait to hear more about this Leigh!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Corin and Tracy - thanks for the well wishes!
Corin - where is the info on the new posters? Also, i'm glad you suggested someone other than CafePress because I ordered 8 t-shirts to give as Christmas gifts and I was so disappointed in the quality of the screen print (especially for the price!) Did you make your own screen print or did Vistaprint do it for you?
Thanks again, girls.
Leigh
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!
kate,
Yes, a friend of mine who does many marathons put the run on active.com for other runners to view.
please let me know what you hear from the girl this weekend.
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!
sure will
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Leigh, Brilliant ) I know it will be a HUGE success!
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
Great! I would enter the 5K if I lived closer! I haven't done a 5K since 2002 and I want to do one soon! I can't wait to hear more about it!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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