i tried to email ribbons@cdhsupport.org with Grayton's picture, name and dates. however, the email was returned. Does anyone else know how to get the ribbons personalized?
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i tried to email ribbons@cdhsupport.org with Grayton's picture, name and dates. however, the email was returned. Does anyone else know how to get the ribbons personalized?
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!bowel- liver- small intestines up with gortex repair had her repair while on ECMO on ECMO for 44 days (her entire life) Nitrate for 30- vent for 34 days- oscilator for 10 days Our Blog: www.thecreekbaums.blogspot.com
It's ribbons@cherubs-cdh.org
If I posted the wrong address somewhere, let me know! I have a tendency to do that.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Thanks, Dawn! By the way, the Silver Lining newsletter "mysteriously" appeared on my computer today. It was the craziest thing...all of the sudden it was downloaded and I didn't even click on it. Anyway, hopefully you got my email last week about the upcoming 5K run (For Grayton's Glory) being held on May 9th (her Bday) with all proceeds going to CHERUBS!!! Anyway, sorry i didn't get my story in before the deadline, but did you receive the email about the event, as well as the donation to First Giving? You did get the donation, right?
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!
That is really weird about the newsletter, Leigh! Grayton was sending you a sign.
Got the donation through First Giving - thank you!!!!
Grayton's Glory will be listed in the newsletter.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Yes, it was a sign from above!! Grayton and God are playing a good trick on me. SHe wanted me to see her infamous picture!
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown!
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