I made one already but having problems uploading it to you Dawn. It's on myspace right now but will try again tomorrow.
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Stay Connected
I made one already but having problems uploading it to you Dawn. It's on myspace right now but will try again tomorrow.
Lots of Love- Carrie Mom to Colton Michael- RCDH-Surgery at 5 days for a repair and at 6 months to add a patch.
Hi Everyone, loving these videos coming in! Please e-mail them to me at membership@cherubs-cdh.org - I need the actual video file to work on this (I can't download them from youtube or myspace). Thank you!!!
Steph, I expect to see at least 5 videos from you all this week!!! And I want one of Miss Shelby saying "I own Congenital Diaphragmatic Hernia Awareness!".And all the girls with her of course!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I am trying to get my camera and computer to cooperate!
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
You can do it, Lynne!
I'm going to upload the videos I receive into a folder on our YouTube acct so that we know which ones we have received.... will try to get that done by tomorrow. But please don't just send me to your YouTube acct, I do need the actual file on my computer to do this.
I am so excited about this video, we're going to raise so much awareness while standing up to this trademark!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Stephanie, that is a GREAAATTT idea!!!!! We can get one of the guys to record it for us.
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
I will try again. I hope you can use it as Brooke worked really hard on her lines.
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
I sent mine again. Is there anyway you can tell me if it works?
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
Love the group video idea but I need separate videos please!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Some of the videos are posted on our youtube account! I haven't made "the" video yet, these are the clips that have been submitted.
http://www.youtube.com/view_play_lis...10697623A7F2EC
Just a few of the "I Own Congenital Diaphragmatic Hernia Awareness" - videos by families, friends and medical care providers fighting the trademark on "Congenital Diaphragmatic Hernia Awareness" by Breath of Hope, Inc. http://www.ipetitions.com/petition/cdhawareness
To participate e-mail your video file to membership@cherubs-cdh.org with your cherub's name and info and the name(s) of those in the video. The script is "I (or we) Own Congenital Diaphragmatic Hernia Awareness"
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Can someone please tell me how to submit the video? I'm guessing mine didn't work because it's not there. How do I send it from ivideo on the mac? Thanks!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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