Anyone flying out of Cleveland, Columbus, or Pittsburgh?? Should I fly alone, I would like to be on with someone I know.
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Anyone flying out of Cleveland, Columbus, or Pittsburgh?? Should I fly alone, I would like to be on with someone I know.
Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.
Karla, I'm going to ask Chris about that. We need EVERY room to count!!!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Thanks Dawn!!!! I will call today!!
Fer, if the girls are not counted my sis will be rooming with us. I will let you know : )
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Ok. I booked my room!!!!!!!!!!!!!!!!!!!!!
I booked a 2 bedded room with the 97 rate including breakfast for 2 adults!!!!!!!!
SOOOOOOO... NEED A ROOMIE!
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
I have sent them an email to try and organise as much of our booking that way so it doesn't cost me a new mortage on the house for the call! lol Haven't back yet but hopefully will by tomorrow.
We have almost worked out what we are going to do while we are in the states. Some of the things we wanted to do we aren't because it is summer holiday's and there will be way too many people around (like Yosemite). We are VERY excited and I can't WAIT to meet you ALL. I can't even imagine meeting you Dawn - don't know how I will feel and react??? Can't wait though
Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
Fer does not need a roomie! I'm it : )
Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.
Chris booked our room today!!! Now just got to decide if to fly or drive. Probably won't decide until after Ian's doctor appts. in June. So excited to meet everybody!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
This conference is going to be great! I'm so excited!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
Danielle, I'm already tearing up! I know, I know, I'll try to keep down the public displays of emotion! LOL
Me too, Karla and Tracy!!!!
Ok, I still need a roomie but I'm going to be there an extra day or two so not sure what days yet. Will book my room and then find a roomie or maybe will just the space to store whatever we need to store for the conference, etc. I'm ok either way but would rather share and save some $$$.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
URG, I am so jealous! I want to go so bad. I was trying to save some money but then got into a fender bender and now have to pay a women $700 for a 3 inch scratch on her bumper...
I'm still going to try...
Shauna Curtis - Mom to Addisen Noel born 12/10/2003 with LCDH diagnosed at birth- 5 1/2 weeks in NICU- 70 days with NG Tube- Cleft Lip & Palate- Horseshoe Kidney. Also Mom to: Mitch 08/17/2006 Luke 12/11/2008
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