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Thread: CHERUBS 2009 Conference Hotel & Information !!!

  1. 02-23-2009, 01:27 PM #41
    KimberlySwitzer
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    Im curious as well, my sister and I will be staying later and are wondering about the rate.
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
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  2. 02-23-2009, 08:19 PM #42
    FernandaArce
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    I already filled my registration form. As soon as I book my flight, I'll book a room.

    I am sooooo excited!

    Dawn, do you know if Polly Tarbell is comming?
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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  3. 02-23-2009, 08:23 PM #43
    LynneB
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    YEH for Canadians! My BFF is from Toronto and she has been dragging us to hockey games anytime the Maple Leafs are close by.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  4. 02-23-2009, 08:24 PM #44
    Dawn Torrence Ireland
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    Polly... from the feeding center or is this a different Polly? So far, no one named Polly has registered.

    Kim and Danielle, Chris (our hotel contact) should let me know by tomorrow. I'm sure it will be the same rate... I'll make a huge fuss so that it is!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

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  5. 02-23-2009, 08:25 PM #45
    FernandaArce
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    Yes, Polly from the feeding center.
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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  6. 02-23-2009, 08:26 PM #46
    FernandaArce
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    Oh, BTW, did you receive my registration form?
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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  7. 02-23-2009, 08:41 PM #47
    Damon andSharonknott
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    It would be SOOOO wonderful if Polly Tarbell from KLUGE goes.
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
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  8. 02-24-2009, 01:20 PM #48
    FernandaArce
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    Has someone invited Polly yet?
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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  9. 02-24-2009, 01:53 PM #49
    JenniferBrown
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    I will register tonight.
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  10. 02-24-2009, 05:00 PM #50
    Dawn Torrence Ireland
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    We'll invite her but please don't get your hopes up.... we invited her last year and she was too busy to attend. She's in high demand and understandable why!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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