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Thread: We had a wonderful visit in Indiana.

  1. #1

    We had a wonderful visit in Indiana.

    Here are some pictures from this week-end.
    We shed tears, laughed, talked and made many memories.





































    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  2. #2
    There where SO many girls in the house....Shane and Steve were a little out numbered.
    Ayla was always smiling (except for bedtime) and the twins were a true delight.
    Our girls are missing all the action in the house!!!

    I will tresure this visit always.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  3. #3
    Aww it looks like you all had a great time!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage

  4. #4
    Great pictures!
    Thanks for sharing!!!
    http://i289.photobucket.com/albums/l...glishsmall.jpg -Katie English Mom of Henry: LCDH diagnosed at 18 weeks gestation- born March 25- 2008. ECMO for 2 weeks- CDH repair at 3 1/2 weeks- home at 8 weeks! Still on O2 at night. Also Mom to Emma (12)- Gail (10)- and Claire (7)- (Henry's big sisters and loyal guardians!) www.carepages.com (Look up HenryEnglish)

  5. #5
    LOVE all the pics!
    You guys look like you had a brilliant time together.
    I'm sure Shane and Steve loved having girls everywhere.

    xxx
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  6. #6
    Awwww, love all the photos!!!! Looks like you had a blast together!!! Amy, I love the baby bump, you look great!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  7. #7
    I am so jealous! But hopefully next week, I get to see Dawn! NAH NAH NAH NAH NAH! :P
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg

  8. #8
    Wow, I bet the house feels quiet after all that! Glad you had such a blast!
    Chris Tennyson Married to Matt 12 years Mom to Nicole- born 01/06/07 with LCDH- diagnosed in utero at 18 wks. Has g-tube- reflux- eosinophilic esophagitis (EE)- and scoliosis- but one happy and busy toddler! http://i296.photobucket.com/albums/m...s/IMG_5502.jpg

  9. #9
    Love all the photos!! All you girls are beautiful! It does look like you had a great time!!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  10. #10
    Great photos! You look like you all had such a great time!
    Maryanne (mum to Rebecca born 11/11/02 with LCDH)

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