I know Mel! The irony of us staying infection free since Isabel has been home from the NICU and all winter. Of course we would get something at the beginning of Spring! Thank your for being there for us
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I know Mel! The irony of us staying infection free since Isabel has been home from the NICU and all winter. Of course we would get something at the beginning of Spring! Thank your for being there for us
Our precious daughter Isabel Ruth was born on June 24- 2008 with a LCDH. CDH repair- PDA Ligation-ECMO for eighteen days due to MRSA (Staph Infection- Sepsis). Ventillator and Oscillator from 6/24/08 to 8/28/08- INO machine 7/8 to 9/25. Currently home on Oxygen (Nasal Cannulas) and a Feeding Tube (Mic-key button). Currently has Bronchopulmonary Dysplasia and Pulmonary Hypertension. Taking meds for Pulmonary Hypertension- Bronchopulmonary Dysplasia- and Gastroesophageal Reflux.
She must have heard that Michael got to go to the OR this week and she got jealous. Hopefully Alex minds his own business and stays healthy! Rotten kids.
~Mel Mother of Michael: RCDH- ECMO (11 days)- cranial evacuation- VP shunt- hernia repair- g-tube- Nissen fundoplication- pyloroplasty- ASD and VSD closures- tracheostomy- hypospadias repair- pulmonary hypertension...but what he lacks in lung capacity he more than makes up with charisma!
They just seem to throw us for a loop Mel... I think she wanted to join in on the hospital fun.. She is so picky about her oxygen, she does not want to be weaned...Still 20 liters, but they have been able to ween down the blender. One good thing is they did an echo earlier and her pressures are around 47% which is like it was a month ago.. We were expecting a very bad one. You know how they like to get fussy right before the echos and show that they are systemic (lol). She has also been so sick, we were worried that it might have caused the PH to worsen.. but so far she has been good in that area!
Our precious daughter Isabel Ruth was born on June 24- 2008 with a LCDH. CDH repair- PDA Ligation-ECMO for eighteen days due to MRSA (Staph Infection- Sepsis). Ventillator and Oscillator from 6/24/08 to 8/28/08- INO machine 7/8 to 9/25. Currently home on Oxygen (Nasal Cannulas) and a Feeding Tube (Mic-key button). Currently has Bronchopulmonary Dysplasia and Pulmonary Hypertension. Taking meds for Pulmonary Hypertension- Bronchopulmonary Dysplasia- and Gastroesophageal Reflux.
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