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Thank you!! My hubby is and has been out of town since Monday and in meetings ALL day to boot. I've only gotton a chance to bring it up to him and he sounded like it may be doable!I really hope he and I, and my 3 kids, with my mom, will be able to go!
I definitely want to go and meet you guys and many more!!
Diagnosed at 3 1/2 years old- My son had always been a healthy- active toddler til 3 days before diagnosis. In 2/09- he was in a ER being treated for stomach flu. X-rays revealed his intestines were in his chest & colon stuck inside the hole in his diaphragm. He was showing signs of shock. We were devastated! He was wheeled away for surgery in the night. NG tube 5 days- Oxygen 3 days. We have NO idea how long he was this way but he likely had a hole in his diaphragm at birth- and his intestines- colon migrated up. He also has a large hole in his heart- 17mm-20mm. Diagnosed with ASD (Atrial Septal Defect) & will undergo Open Heart Surgery. I would love to speak to any other families of toddlers diagnosed with CDH or with anyone whose child is/has undergone a heart procedure.
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