Did I read on one of the postings that CHERUBs members may get discounts for local attractions. Is this the case? If so, how do we go about getting discounted tickets? Thanks! I'm planning out our trip!
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Did I read on one of the postings that CHERUBs members may get discounts for local attractions. Is this the case? If so, how do we go about getting discounted tickets? Thanks! I'm planning out our trip!
Diagnosed at 3 1/2 years old- My son had always been a healthy- active toddler til 3 days before diagnosis. In 2/09- he was in a ER being treated for stomach flu. X-rays revealed his intestines were in his chest & colon stuck inside the hole in his diaphragm. He was showing signs of shock. We were devastated! He was wheeled away for surgery in the night. NG tube 5 days- Oxygen 3 days. We have NO idea how long he was this way but he likely had a hole in his diaphragm at birth- and his intestines- colon migrated up. He also has a large hole in his heart- 17mm-20mm. Diagnosed with ASD (Atrial Septal Defect) & will undergo Open Heart Surgery. I would love to speak to any other families of toddlers diagnosed with CDH or with anyone whose child is/has undergone a heart procedure.
I'm working on getting discount tickets, Jenn!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
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Hi ladies
My mom may not come to the conference due to her job so if any one is looking to shared rooms with me and Adrian. Pm me please ....
Jenn
The Scott Lab from Baylor will be in attendance. At least 2 or 3 of us. Dr. Scott will be one of the speakers. The rest of us will come to socialize...
It turns out my sister and I are unable to attend as I need to move August 1st and wont have time to do both... so hopefully next year
Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
oh no Kim! I was looking forward to meeting you!
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
I was very much looking forward to meeting all of you too!!! But I think getting back to school is what I need to do right now, and that means moving at the end of july/beginning of august and there is no way I can swing it to do both of them...
Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
That is great the Scott Lab from Baylor will be in attendance...looking forward to hearing what you have to talk about!!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
That's fantastic, thank you all for taking the time.Originally Posted by Scott Lab
~Mel Mother of Michael: RCDH- ECMO (11 days)- cranial evacuation- VP shunt- hernia repair- g-tube- Nissen fundoplication- pyloroplasty- ASD and VSD closures- tracheostomy- hypospadias repair- pulmonary hypertension...but what he lacks in lung capacity he more than makes up with charisma!
Oh Kim! I'm sorry you are not going!
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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