Stay Connected 
We're putting together a (rather very long) blog post of all the ways our official Congenital Diaphragmatic Hernia Awareness ribbon is raising awareness! So if you're posting the ribbon - personalized or not - let us know!
If you're posting it on your site, blog, Facebook, Myspace, other forums, etc - let us know that too! Please post the link so we can see how you're raising awareness!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
My neice posts it on her Facebook.
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
It's under causes on my facebook page, in videos we have made of Faith, on T-shirts, and a laminated paper ribbon is on my purse. I also wear the cherubs bracelet.
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
Amy, LOVE the purse ribbon idea! Never even thought of that, great idea!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I have mine on my facebook site.
Kath Mum to Jessica Kate - born sleeping 09/09/2008 (due 17th Jan- 2009) Left-sided CDH- Trisomy 18 (Edward's Syndrome) and Trisomy 9. Also Mum to Sam-9- Hannah-7 and Zac-4.
Mine is on myspace.
Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
I have t-shirts with the ribbon, facebook, and the car magnet.
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
Hi,
I have it on my facebook pictures and also on caden site www.caden.co.uk
Our little miracle born at 35 weeks with unknown CDH right side - repaired after 69 days with a patch! Lots of other issues to go with it and still undiagnosed- but very gorgeous.
Wonderful!!! If any of you have photos of you wearing ribbons, please post them!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I love our ribbon and use it alot! I have a tattoo of it, magnets on the vehicles, magnets on the fridge, Thank u cards, it is on my website, facebook and myspace, Hats, shirts, ink pens, stickers and address labels, knitted and crochet it into blankets, we have made an AD in Shane's year book with it, use it on business cards and buttons as well as the name tags last year at the conference. I also have made a few tote bags with it as well as having it printed on photo albums.
Posting Permissions
Reply With Quote