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Thread: I need your photos

  1. 04-26-2009, 05:57 PM #21
    DanielleKessner
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    If you want ultrasound pics Lynne, maybe some members who have them (even if their cherub has already been born) they can send those. It would kind of be cheating but it would still get the message through that CDH impacts LONG before the baby is born. Just a thought if you don't get any from expectant parents. Or maybe post in the Expectant Parent section and ask - they may not all have read this post since it is asking for photos and they may not feel it is a post they need to read???
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
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  2. 04-26-2009, 07:09 PM #22
    AmyMiles
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    Emailed Faith's to you! What a great idea!
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
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  3. 04-26-2009, 08:53 PM #23
    SCURTIS
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    Lynne,

    Let me know if you want some u/s pics of Cherubs that have already been born... I could send you some.
    Shauna Curtis - Mom to Addisen Noel born 12/10/2003 with LCDH diagnosed at birth- 5 1/2 weeks in NICU- 70 days with NG Tube- Cleft Lip & Palate- Horseshoe Kidney. Also Mom to: Mitch 08/17/2006 Luke 12/11/2008
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  4. 04-27-2009, 09:52 AM #24
    FernandaArce
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    I would love you to include Juanpa
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
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  5. 04-27-2009, 04:45 PM #25
    stacynovak
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    You are more than welcome to include my son. If you would like another one or a different one, Just let me know and I can email it to you.
    Mother of two sons. Caleb born with CDH on 4-13-01. Had repair surgery at 3 days old; spent 2 months in hospital. Had another surgery in 9-07 for small bowel obstruction and several adhesions. He is living a nice normal life right now. He is also a wonderful older brother to Ian who was born in 7-04.
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  6. 04-27-2009, 04:48 PM #26
    stacynovak
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    You are more that welcome to use the picture of my son. I can email you one if that is easier. Just let me know.
    Mother of two sons. Caleb born with CDH on 4-13-01. Had repair surgery at 3 days old; spent 2 months in hospital. Had another surgery in 9-07 for small bowel obstruction and several adhesions. He is living a nice normal life right now. He is also a wonderful older brother to Ian who was born in 7-04.
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  7. 04-27-2009, 07:15 PM #27
    jennifer1.white
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    Chastity's pictures is on the way. Thanks for including her.

    Jennifer
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  8. 04-27-2009, 08:44 PM #28
    StephanieOlivarez
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    Wonderful Idea Lynne!!
    Thanks for letting us be apart of Bear's video.
    Shelby's picture on the way.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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  9. 05-03-2009, 02:11 PM #29
    LynneB
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    I had luck with all of the pics that you all sent. I need more or your permission to try to get them from your album. Thanks ~ Lynne
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  10. 05-05-2009, 07:03 AM #30
    LynneB
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    The video is done! Now I just have to get it posted. It is very simple so please don't judge. This is my very first video.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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