Thanks Kate, I gotta have Baer's guardian Angel Shannon in there! 0:>)
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Thanks Kate, I gotta have Baer's guardian Angel Shannon in there! 0:>)
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
Hi Lynne
Love the idea I will send it tonite.
Hi Lynne
Love the idea I will send it tonite.
I've just send you one of Sade!!
Mommy of Sade Born 12-07-08 Diagnosed at 21 weeks gestationion. Polyhydramnios. Day 1 vent oscilator- day 2 ECMO. LCDH goretex repair on ECMO (she had no left diaphragma at all) on the 4th day of her life- stomach-bowel and spleen up. 5 days on ECMO during ECMO a cranial bleeding in the small cerebellum. Developed chylothorax after surgery (treated and solved with octreotide)and hydrocephalus after cranial bleeding.1 day on the infant flow- vent for 38 days 12 days NO2- Sildenafil (viagra) and Milrinone. Sade lost her battle with CHD after 40 days NICU on 20-08-2008 because the dokters could not treat her anymore caused to her high pulmonale hypertention and brain injurie. http://3.bp.blogspot.com/_r6I83gw3Mq...A/s320/S18.jpg http://sadehemmekam.blogspot.com
Hi Lynne,
Noah's photo is on the way.
xx Margaret
I sent you a picture.
Lots of Love- Carrie Mom to Colton Michael- RCDH-Surgery at 5 days for a repair and at 6 months to add a patch.
Thanks for the photos! They are fabulous! I am hoping that some of you expectant parents will send ultra sound pictures as well. I want to show that there are more babies with CDH being born all the time.
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
I would LOVE it if you would use a picture of Ericka..seeng as how she's going through it right now, sort of a different perspective, you know? If you want, I can email you a couple pictures that you can choose from.
Mommy to a Miracle: Ericka Elizabeth (3.18.2009)-LCDH diagnosed in utero at 29 weeks- Venitlator- Nitric Oxide- Repair surgery at 13 days- Venous Venous ECMO at 16 days- Venous Arterial ECMO at 21 days- came off ECMO at 36 days- off oxygen support at 84 days- G-tube surgery at 78 days- home at 100 days..FINALLY! I'm so proud of her and all the progress we have made! All meds and g-tube DC'd on May 5th- 2010. She's still a skinny minny but she's healthy and happy! She's amazing!
ERICKA'S JOURNEY: http://www.onetruemedia.com/shared?p...39&skin_id=801 www.myspace.com/tracy_leigh
Thanks Tracy, please email pics of Ericka to me.
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
What a wonderful thing to do Lynne!!
I will email you a pic of Gabe as well.
xx
Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
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