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Thread: Need help TODAY for a chance to win $100K for CHERUBS

  1. 04-23-2009, 01:05 PM #1
    Chris and TracyMeats
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    Need help TODAY for a chance to win $100K for CHERUBS

    This was a note posted on facebook today by Dawn...just passing on the info. since Dawn is out of the office today and can't post to the Cherubs' forums.

    Calling all CDH families!!! Need help TODAY to win $100K for CHERUBS to help CDH families! (thanks to Freedom for this info!!!!)

    Hugh Jackman has pledged to
    donate $100,000 to a charity who can convince him why they are
    worthy using Twitter. The winner will be announced on Friday.
    Please help us tell Hugh Jackman why we should win his donation.
    Sign on (or sign up at twitter.com) and search for
    RealHughJackman. Click to "follow" him, and then "tweet" all the
    good reasons you can think of for him to donate the money to
    CHERUBS.
    If you can't think of anything on your own, try tweeting
    these...

    @RealHughJackman $100,000 could make the world awareness of CDH, a birth defect that has hurt .5 million babies since 2000. cdhsupport.org

    @RealHughJackman could help save 1000's of babies every year by helping fund research on CDH! cdhsupport.org

    Please repost, twitter, invite family and friends to join, post on forums, etc.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  2. 04-23-2009, 01:45 PM #2
    mskelly
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    Anybody know how to tweet???
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
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  3. 04-23-2009, 02:40 PM #3
    KateC
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    Birds do lol . . .

    What in the Heaven above is Twitter?? I keep hearing about it.
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
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  4. 04-23-2009, 02:53 PM #4
    LynneB
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    Twitter is like texting kinda. You post every since detail of your life and a bunch of peple read it immediately. Twitter may be good for Cherub families with babies in NICU. Twitter is like blogging on steroids. It has been around for over a year. I got all this info from my teenagers. I can barely text.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  5. 04-23-2009, 06:25 PM #5
    mskelly
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    I come to CHERUBS for my daily dose of laughter now!
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
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  6. 04-23-2009, 06:36 PM #6
    SCURTIS
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    I signed up but can't figure it out...
    Shauna Curtis - Mom to Addisen Noel born 12/10/2003 with LCDH diagnosed at birth- 5 1/2 weeks in NICU- 70 days with NG Tube- Cleft Lip & Palate- Horseshoe Kidney. Also Mom to: Mitch 08/17/2006 Luke 12/11/2008
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  7. 04-23-2009, 06:48 PM #7
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    I'm technologically challenged so will have no chance figuring out how to use twitter in one day. But I've come up with a line if someone can twit it for me.

    "Help save the most fragile babies in NICUs worldwide; help fund research on the cause and better treatments for CDH (cdhsupport.org).
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  8. 04-23-2009, 06:49 PM #8
    Dawn Torrence Ireland
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    Thank you, Tracy! Thank you everyone! Margaret, love that line!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  9. 04-23-2009, 07:03 PM #9
    KarlaHolt
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    I tried but I don't know what I'm doing!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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  10. 04-23-2009, 07:36 PM #10
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    Lynne I think it's time to recruit the younger generation - your daughters might need to twit for us lol!
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