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Thread: Letters for CDH

  1. 04-29-2009, 05:41 PM #1
    Dawn Torrence Ireland
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    Letters for CDH

    Adorable cherub Carter's mom, Kellie, is spearheading a letter campaign to try to get more media attention and awareness for CDH!

    She's asking all CDH families and friends to write to celebrities and politicians and tell them about CDH. She is asking that you use blue envelopes.... I know most of you (quite understandably) steer clear of the turquoise that promotes the CDH awareness trademark but you can use baby blue or another shade! There are envelopes at Staples and Office Max that are blue with clouds on them!

    For more information, you can go visit Kellie's blog at http://lettersforcdh.blogspot.com

    WTG, Kellie!!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  2. 04-30-2009, 11:19 AM #2
    Chris and TracyMeats
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    I think this is a great idea!! I will have to go check out staples and see about the blue envelopes with clouds on them.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  3. 05-01-2009, 10:18 AM #3
    KateC
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    Awesome idea ; )
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
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  4. 05-01-2009, 10:30 AM #4
    mskelly
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    We're on board!
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
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  5. 05-01-2009, 12:19 PM #5
    PennyCampsey
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    great idea !
    who/where do we start ???!!!
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  6. 05-02-2009, 11:27 AM #6
    CarrieCrum
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    Yeah. Im in.Send me more info. Also
    Lots of Love- Carrie Mom to Colton Michael- RCDH-Surgery at 5 days for a repair and at 6 months to add a patch.
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  7. 05-03-2009, 02:01 PM #7
    KimberlySwitzer
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    Ooooh I'm on board for this as well!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
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  8. 05-03-2009, 04:03 PM #8
    Dawn Torrence Ireland
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    Directions are on the site - http://lettersforcdh.blogspot.com/

    You just send letters to the addresses that Kellie has posted.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  9. 05-04-2009, 05:56 PM #9
    Chris and TracyMeats
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    A date (random) has been picked per the blog----July 15th!! Addresses to send these letters/envelopes will be posted soon.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  10. 05-04-2009, 07:00 PM #10
    KarlaHolt
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    Sounds interesting....are a lot of CHERUBS members going to do this?
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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