Stay Connected

Results 1 to 4 of 4

Thread: May 17, 2009 - Congenital Diaphragmatic Hernia Day

  1. #1

    May 17, 2009 - Congenital Diaphragmatic Hernia Day

    May 17th is almost here! This day is set aside to say a prayer (or make a wish) for the end of Congenital Diaphragmatic Hernia. CDH is a devastating birth defect that has struck more than half a million babies since 2000. That's a baby every 6 minutes diagnosed with CDH! 50% of these babies do not survive and the cause is not known. More awareness and research is desperately needed!!!!

    On May 17th please take a moment to say a prayer (or make a wish) that the cause and prevention of CDH is found. There is power in prayer (and wishes)! And please tell at least 1 person about CDH to educate them about this birth defect. Just 1 person (or more!).

    How else can you help?

    Ask your church or other group to include info about CDH in their programs for that day. Attend an event. Wear a CDH ribbon, wear a shirt or other logo item. Hand out buttons. Release balloons. Send info to your family and friends. Post on your blogs and web sites. Post on your Facebook or Myspace account. Get more friends to join this event!

    ----------------------------------------------------------------

    May, 2009 Events

    Jak’s Cruise for Compassion – May 2 in Fayetteville, Arkansas to raise money for the Jack Ryan Gillham Foundation. For more information, please visit www.jackryangillham.org

    March for Babies – May 16 in San Antonio, TX. Join CHERUBS member Karen Myers as she marches in memory of her children Kaleigh and William and raises awareness and funds for the March of Dimes.

    Peyton’s Promise – May 16 in Sea Isle City, NJ to raise money for the Children’s Hospital of Philadelphia CDH Research fund. For more information you can visit http://peytonlaricks.blogspot.com

    Michigan Member Bowl-a-Thon - May 17 in Flint, Michigan. You can reach Barb at bwagner@cherubs-cdh.org or 810-845-8480

    Day of Prayer for CDH - May 17 around the world! You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-610-0129 or visit our blog at http://cdhsupport.blogspot.com for more information

    North Carolina Get-Together for members of CHERUBS - May 17 at Pullen Park in Raleigh, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-610-0129. http://nccherubs.wordpress.com/

    North Carolina Balloon Release - May 17 at Pullen Park in Raleigh, NC. You can reach Dawn at dawn.williamson@cherubs-cdh.org or 919-610-0129. http://nccherubs.wordpress.com/

    --------------------------------------------------------------

    Official Congenital Diaphragmatic Hernia Awareness Ribbon buttons!

    http://cdhsupport.blogspot.com/2009/...ic-hernia.html

    100 for $10 - that's a lot of CDH Awareness! Great project for May 17th - CDH Day of Prayer and Education!

    This is the OFFICIAL Congenital Diaphragmatic Hernia Awareness Ribbon as voted on by CDH families themselves. It is not owned by anyone, there are no trademarks or copyrights to it and it is not used by any other cause. It is the CDH Awareness Ribbon recognized by 1000's of families around the world, Wikipedia and the members of the Alliance of Congenital Diaphragmatic Hernia Organizations, which is a group of dozens of CDH organizations, sites and researchers.



    CHERUBS does not make any money off of your orders for buttons, not 1 cent! We just want everyone to raise awareness!!!

    You can order other CDH awareness items at http://www.cafepress.com/cherubs - a small percentage of the purchases at our cafepress store does go to CHERUBS.

    It's all about raising CDH Awareness and hoping for an end to this devastating birth defect!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Just reminding everyone what today is!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #3
    A HUGE thank you to those of you who participated and said a prayer (or made a wish) and told someone about CDH.

    And an especially HUGE thank you to those Advisors and State Reps who posted on Myspace and Facebook and their blogs about today and supported not only CHERUBS in promoting this day but ALL CDH families as well!!!! I know there are a couple of you who posted all day and really educated a lot of people - I want to say thank you to you for caring so much about CDH babies!!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  4. #4
    We are spreading CDH awareness!!! Praying for an end to CDH. I lit a candle tonight in memory and in honor of all our beautiful cherubs here on earth and in heaven.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

Similar Threads

  1. "National Congenital Diaphragmatic Hernia Awareness Day
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 06-25-2009, 04:08 PM
  2. "Congenital Diaphragmatic Hernia Awareness Day"
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 12-07-2008, 01:15 PM
  3. CHERUBS - Congenital Diaphragmatic Hernia Organization
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 2
    Last Post: 11-29-2008, 11:12 AM
  4. Congenital Diaphragmatic Hernia Research Graphics
    By Dawn Torrence Ireland in forum Research Studies (Public)
    Replies: 0
    Last Post: 11-18-2008, 11:32 AM
  5. Congenital Diaphragmatic Hernia Education
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 09-02-2008, 02:17 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •