Thanks Kate!
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Stay Connected
Thanks Kate!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
Great pics - I love being able to see you all! lol
Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
LOVE THE PICTURES!!!
LOVED THE WHOLE WEEK-END!!!! THANKS KATE!!!!
It was wonderful to see friends and make new ones.
It was AWESOME to chat with you Stacy!!! CALEB is such an inspiration to ALL!!!!!!
Braden is a DOLL BABY!! It was great to meet you Karla and your family.
It was great to see the Nava clan, the Hess Clan and EVERYONE!!!!!
I to have pictures..will get them up soon!!!
Love to you all.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Here is a site to go visit the pictures, it will take a long time to try and post here.
http://community.webshots.com/user/k...host=community
Please, don't thank me, I thank all of you. If it were not for you wonderful people, the get together would not have been possible!!
Love you all and am so happy I met each of you!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Love the pics Kate...
great pics Kate xxx
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
Great pic's Kate!
Maryanne (mum to Rebecca born 11/11/02 with LCDH)
So happy it all went so well - can't wait to meet those of you who are going to SA!
Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
Great pictures. I still have to get mine on here. My computer has been acting up lately so I don't want to download them off my camera yet.
Mother of two sons. Caleb born with CDH on 4-13-01. Had repair surgery at 3 days old; spent 2 months in hospital. Had another surgery in 9-07 for small bowel obstruction and several adhesions. He is living a nice normal life right now. He is also a wonderful older brother to Ian who was born in 7-04.
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