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Thread: CHERUBS Australia Annual Forum 2009

  1. #1
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    CHERUBS Australia Annual Forum 2009

    Please read the information below kindly put together by our Fundraising Coordinator, Margaret Polacska. If you are planning on attending please contact us at information@cdh.org.au or fundraising@cdh.org.au for a registration form.

    I am pleased to announce that CHERUBS Australia has been successful in obtaining a $3,000 grant from the City of Melbourne to help fund this year’s CHERUBS Australia Annual Forum (CAAF), which will be held at the Rydges Hotel in North Melbourne (Cnr Flemington and Harker Rd North Melbourne - Opposite the Royal Children's Hospital) on Friday 16th and Saturday 17th, with a family day on Sunday 18th October 2009.

    Rydges North Melbourne was chosen for its competitive pricing, standard of rooms and convenient location—just a short tram ride from the heart of Melbourne and close to the Royal Children’s Hospital and the Royal Women’s Hospital.

    If you would like to book accommodation at Rydges, please go to http//www.rydges.com/cwp/cherubs or call Alex Jonas on (03) 9329 1788. I inspected the recently refurbished hotel guest rooms and found them to be spacious, clean and comfortable, and they catered well for families.

    In addition to the grant, we have also set a fundraising target of $3,000 to raise the balance of the conference budget. The total budget will cover the cost of conference facility hire and catering (morning tea, lunch & afternoon tea).

    The conference program will incorporate medical workshops on Friday and support workshops on Saturday. Speakers are yet to be confirmed, however, we already have commitment from Dr Michael Stewart (Consultant Neonatologist—Royal Women’s Hospital and the Royal Children’s Hospital) and Theresa Lynch (Bereavement and Support Counsellor from the Fetal Management Unit—Royal Women’s Hospital) to facilitate workshops.

    In addition to the workshops, two social events will be organised. There will be a family dinner on Saturday night at a suitable restaurant close to the hotel, and a family day on Sunday at the Werribee Open Range Zoo, which is full of amazing African animals living in a wide, open savannah—the kids (and adults) will love it!

    We are expecting this year’s CAAF to be as successful as past CAAFs and look forward to meeting up with new and old CHERUBS friends. We hope you can join us here in Melbourne.


    Margaret Polacska
    Fundraising/Funding Coordiantor
    fundraising@cdh.org.au
    On behalf of the CAAF Melbourne 2009 Committee
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

  2. #2
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    That sounds like a blast, Danielle!
    ~Mel Mother of Michael: RCDH- ECMO (11 days)- cranial evacuation- VP shunt- hernia repair- g-tube- Nissen fundoplication- pyloroplasty- ASD and VSD closures- tracheostomy- hypospadias repair- pulmonary hypertension...but what he lacks in lung capacity he more than makes up with charisma!

  3. #3
    Congratulations on the grant!! It sounds like you have an amazing conference planned.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  4. #4
    Danielle it sounds like a wonderful conference is planned!! I so wish that I could attend!

    Congrats on the grant....that is HUGE!! way to go!

    Barbara

  5. #5
    What great news about the grant!!!! WTG!!!!
    Sounds like the conference will be FANATSTIC!!!
    Can't wait to her more.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  6. #6
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    Grant was fantastic - we are soooo lucky to have the Amazing Margaret (Noah's mummmy) on our 'team'. She put a lot of work into the application - we can't thank her enough
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

  7. #7
    WAHOOO.... should be fantastic

    WTG on the grant xx
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  8. #8
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    Danielle you helped a lot as well! It was a team effort. I just can't wait for the conference!! i hope lots of families come along.

  9. #9
    WTG Margaret and Danielle!!
    Sounds like the conference is going to be GREAT!!!
    Angela - mum to Max (LCDH 30/4/05 - 21/5/05) Also mum to Joseph 9- Christopher 7 and Dominic 2.

  10. #10
    Can't wait to meet everyone!!! Definately going to be the highlight of my year!!

    Mummy to Savanna Saige - born 27/07/2008 with LCDH- Repair at 6 hours old with mesh patch- nitric oxide for 4 days- ventilation for 6 days- oxygen for 14 days- released home with mummy & daddy after 26 days in NICU & Special Care Unit!!

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