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We will be working with and are taking part as a family in a genetic study that is looking into congenital diaphragmatic hernias and how they are passed on in families. This is the medical problem that my brother (Terry Freed-44) had corrected, as well as our Daughter (Candace Freed-30) our Son (Charlie Freed-25) and my brother (Larry Freed-39)'s baby had that passed away during the correction attempt.

We have been in touch with research assistants and doctors from Boston Children's Hospital about this. Because our family has such a high incidence of CDH they are VERY interested in studying our whole family's genetics. They will sending two doctors and a research assistant to Cleveland, Ohio to study us and take samples of our blood and a brief medical history.

They will have their team here in the Cleveland, Ohio area to do this study work on Sunday 08-09-09.

Our daughter (Candace Freed) has agreed to allow them come to their house and draw blood and take any information.

This should help some to determine what causes CDH and will hopefully help to save some lives, as well as possibly future lives of some of our family members.

If you have a similar family situation, Please consider working with these folks on their CDH study as well. Meaghan K Russell, (MRUSSELL@PARTNERS.ORG)

We will let you all know how this day went and post some pictures here as well.

Debbie and Gerry Freed and Family [BORF@SkyBusters.org]
Cleveland, Ohio http://www.geocities.com/cdh_freed_family/