Here is the link to the broadcast taken from Shawn and Stephanie's blog...Kamryn was on the news!!
http://www.the33tv.com/videobeta/wat...db86&src=front
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Here is the link to the broadcast taken from Shawn and Stephanie's blog...Kamryn was on the news!!
http://www.the33tv.com/videobeta/wat...db86&src=front
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
amaizing, its great to show the world our stories.
http://i618.photobucket.com/albums/t...bonsmall-1.jpg http://i369.photobucket.com/albums/o...las/img253.jpg JM having a bath- favorite time of the day !!! Marilu- mom to Gael 10 years old, Derick 4 years old and my cherub Juan in a Million diagnosed in utero @ 18 weeks with LCDH. Born at 38 weeks- repair day 12- 2/3 of diaphram missing (in two sections) part of the bowels and liver in chest cavity. Oscillator 8 days- vent 14 days- extubated day 22- 1st full bottle day 28- chest tube for 21 days- Home day 42!!!! NOW 6 YEARS OLD And still doing miracles, Loves karate classes. -*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-
Very cool! So exciting that Kamryn is coming home on Monday!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
The news clip is great!!!!
Shauna Curtis - Mom to Addisen Noel born 12/10/2003 with LCDH diagnosed at birth- 5 1/2 weeks in NICU- 70 days with NG Tube- Cleft Lip & Palate- Horseshoe Kidney. Also Mom to: Mitch 08/17/2006 Luke 12/11/2008
Great to hear the positive news stories. Tracy thanks for always keeping us updated.
What great news coverage. Great news Kamryn will be coming home on Monday. Happy Birthday Steph!!
Tracy, thank you so much for keeping us all updated on so many of these amazing cherubs. You truly are their guardian angel helping us all to know exactly where they are at, so thank you!!
xx
Kath Mum to Jessica Kate - born sleeping 09/09/2008 (due 17th Jan- 2009) Left-sided CDH- Trisomy 18 (Edward's Syndrome) and Trisomy 9. Also Mum to Sam-9- Hannah-7 and Zac-4.
What a wonderful day Monday will be!!! : ) Congrats Studdard family and Happy Birthday Steph!
And I agree - many thanks Tracy for all of your updates!! : )
Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
Yeah!! Congrats and happy birthday!
Thank you Tracy for keeping us posted on these little ones!
Nicolle Colvin Mommy to Kasey James 11.16.08-12.19.08 Colorado Representative colorado.cherubs@gmail.com http://cherubscolorado.blogspot.com/
Congrats, go Kamryn!!
~~ Rene- Gregory Zion's mommy ~~ "Rene Couret" on Facebook Gregory's website: http://freewebs.com/gregoryzion CDH Birthing Options: http://freewebs.com/cdh-birthing http://lagm.lilypie.com/TikiPic.php/nJhs.jpghttp://lagm.lilypie.com/nJhsm4.png
How amazing! What a great moment for CDH! So happy she is coming home!
Peace&Love- Filipe&Joanna Expectant parents to baby Gabriella diagnosed with LCDH at 21 weeks being treat at CHOP
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