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Thread: Submit Your Videos to Go to Congress

  1. #1

    Submit Your Videos to Go to Congress

    Submit Your Videos to Go to Congress & help other families affected by Congenital Diaphragmatic Hernia!

    http://www.youtube.com/watch?v=U4Unz-z4um4

    We are working on a new video to release with the Congressional Bill to stop the trademark on CDH Awareness. This bill and a CDH Research Bill will be ready next week for CDH families to help submit to Congress!

    As most of you know the trademark on "Congenital Diaphragmatic Hernia Awareness" has wrecked havoc in the CDH community with charities being threatened with lawsuits other cyber bullying. It is the ONLY trademark of it's kind in the USPTO and is currently being Petitioned to Cancel by CHERUBS with the support of many other CDH organizations and over 6000 CDH families and pediatric surgeons.

    The Free Awareness Bill video will have the history of why the trademark was created along with court audio, court documents and other public information to show that this trademark was created to harm others and prevent awareness. But it will feature these videos and these beautiful faces standing up against the trademark to keep awareness free for those affected by Congenital Diaphragmatic Hernia and all other causes.

    Other causes and charities will also be submitting their own videos as well. We will be working with the entire non-profit community to help keep awareness free for everyone and to stop this precedent setting trademark that limits awareness on a devastating birth defect that desperately needs awareness.

    The Cherubs Bill video will include photos and videos of cherubs and their stories battling CDH. As we all know there is virtually no funding for CDH research. CDH has affected over half a million babies since 2000 - this means CDH has killed over a quarter million babies since 2000. More research on Congenital Diaphragmatic Hernia to find the cause, prevention and best treatments is desperately needed.

    When the paperwork gets submitted to our Congressmen and Senators, the videos will be included. If you would like your cherub on this video please upload your video to YouTube! Grieving families can also participate! Make sure to e-mail us at awareness@cdhsupport.org with the Youtube link to your video!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects. Founder and President of CHERUBS.

  2. #2
    Will do!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

  3. #3
    What videos are you looking for? Are we supposed to make something new or is it the "I own CDH"??
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email

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