CHERUBS 2010 Congenital Diaphragmatic Hernia Conference

[Dawn Torrence Ireland]

CHERUBS 2010 Congenital Diaphragmatic Hernia Conference

There has been a change in place and time!

Due to the expense of holding a conference in San Francisco, the lack of volunteer support and the costs to families to stay in such an expensive city, we have decided to move this year's conference to Orlando, Florida. We had decided upon San Francisco over a year ago. We hoped the economy would've gotten better by this year but that hasn't been the case. Orlando is much more affordable at about half the cost to CHERUBS and to families attending.

CHERUBS 2010 International Congenital Diaphragmatic Hernia Conference

Orlando, Florida
May 13 - 16, 2010

We have also changed the dates and moved the event up to May. Our conference will coincide with the American Pediatric Surgical Conference and we will work closely with that group to offer CDH families and CDH researchers new services at this year's event. We will have amazing guest speakers as always but we will also include research displays by all the hospitals currently recruiting CDH families for research studies.


We will offer discount Disney and Universal tickets as well. Our conference days are always half days so that families can fmilies have time to enjoy the location and all the attractions that it has to offer.


Details to be posted very soon! Stay tuned to the conference site at http://www.cherubsconference.org

[mskelly]

Oooooh!!! Now that might actually be doable!!

[Chris and TracyMeats]

I am so bummed to see these changes....it does sound like it could be great to coincide with the American Pediatric Surgical Conference. I so wish it was in the summer months, for I can't pull the kids out of school to even think about going.

[JenniferTenney]

Yay Florida! I am going to try to go! Is it over a weekend?

[BrandeeG]

im much more excited about florida!!!

[Dawn Torrence Ireland]

FYI for those of you who are considering going but are financially trying to afford to go:

Many members are going without their families. They are looking for roommates to split the hotel costs. If you're interested in rooming, check out the posts here on CHERUBS forum. Please post any roomie questions in the private conference forums to be safe (this is the public one). http://www.cdhsupport.org/members/vi...?p=56521#56521

Families of CDH Survivors - there are often state, local and federal grants that cover conference attendance costs for disabled children. Talk to your cherub's social worker, insurance agent, hospital social worker for information about your state! Some grants will cover lodging, gas and food. Apply NOW and not wait!

[Elizabeth Howard]

We went last year to the conference (San Antonio). We paid for the trip, but were reimbursed by the Oklahoma Developmental Disabilities Services Division.

They did require that we do pay for a portion of the trip (we paid for hotel), but we were reimbursed for mileage/gas, food, etc... We did have a very thorough application to fill out, and there was an application deadline. They pay for parents to attend conferences every two years, so this year we will not qualify.

The division provides this in hopes that parents will gain more information to benefit your disabled child. I am sure if Oklahoma has this service, many other states have similar programs through various state agencies. We would have never known about this service, if it were not for a friend who also has a disabled child! You definately have to do a lot of digging, to find various programs such as this but they are out there!

Dawn.... do you know of any Federal programs?

[Dawn Torrence Ireland]

I know a mom who used one for a Deaf / Blind conference years ago - trying to find more info on that.

We had one for the same Deaf / Blind conference from the state - they paid for the hotel and conference fee. Shane's sight therapist took care of all the paperwork for us.

[BrandeeG]

I am trying to look up and book everything do you have an idea on hotel info yet?

[MelissaLuna-Manriquez]

Bummed it won't be in California, still thinking of going though!