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Thread: New CDH Song Video!!!!

  1. 03-29-2010, 04:05 PM #1
    Dawn Torrence Ireland
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    New CDH Song Video!!!!

    New CDH Awareness Song and Video! "I'll Never Let You Go" by The Jammies


    http://www.youtube.com/watch?v=vTChMLy2EFk

    "I'll Never Let You Go" by The Jammies

    Available on iTunes soon. Proceeds donated to CHERUBS to help raise CDH Awareness

    http://itunes.apple.com/us/artist/th...es/id289127263

    Featuring 736 children and adults born with Congenital Diaphragmatic Hernia, affectionately known as "cherubs". Members of CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support http://www.cdhsupport.org

    The Jammies - http://www.thejammiesmusic.com/

    CHERUBS - http://www.cdhsupport.org

    Save the Cherubs CDH Awareness Campaign - http://www.savethecherubs.org
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  2. 03-29-2010, 09:08 PM #2
    mskelly
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    I LOVE IT!!!! Smiles through Tears...
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
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  3. 03-29-2010, 09:18 PM #3
    Chris and TracyMeats
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    Job well done!!! Thank you to the Jammies for a beautiful song and thank you Dawn for the video!! I look forward to it being on itunes soon.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  4. 03-29-2010, 09:47 PM #4
    KarlaHolt
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    I cry every time I watch this....it was the first time I really listened to the lyrics...when I heard it at the conference in TX I will admit that the pictures of the kids were getting to me so I had to block out the lyrics so I didn't completely lose it.

    Love it and I will be buying it on itunes when it comes out!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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  5. 03-30-2010, 01:14 AM #5
    candieknotts
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    What a beautiful video, great job. I listened/watched it several times, truly beautiful.
    Candie Knotts Mommy to Johnathen Alexander Porter born Nov. 18 2008- 7lb 8oz- 32 days old- diagnosed with LCDH at 19 weeks- 27 days on ECMO- Repair on day 22- 32 days on Ventilator- 9 days on Dialysis- and 27 days on Nitric Oxide.
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  6. 03-30-2010, 08:23 AM #6
    BrandeeG
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    Love the video!!! What an amazing job everybody did!
    Mom to Kailee Mae Glover Aug 27- 2007 and Gwendolynn Leigh Glover Feb 02-2009 to Feb 26- 2009 Right sided CDH 1 surgery liver failure on ECMO for 23 days dialisis off and onfor 24 days. <a>http://lagf.lilypie.com/STdbm6.png</a> www.caringbridge.org/visit/gwendolynnglover
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  7. 03-30-2010, 12:51 PM #7
    JessicaPayne
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    That was beautiful! Its gets me every time the chorus starts!
    Son went 5 yrs 11 months undiagnosed with CDH. Presented itself as stomach pains so bad he was doubled over in pain. Went to local ER where they gave him pain medication and took x-rays. Once x-rays were looked at was asked if he had x-rays taken at any other time (at 2yrs old- nothing was detected). We were transferred to Janet Weis Childrens Hospital in Danville- PA. Several x-rays and hours later he was taken to surgery. Diaphragm sewn shut and feeding tube placed to help keep stomach in place. Initial stay was 6 days- came home and feeding tube came out. Rushed back to Danville and they removed feeding tube and another 4 day stay to heal.
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  8. 04-05-2010, 04:50 PM #8
    Dawn Torrence Ireland
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    Over 2300 views in the first week on Youtube alone! That's a lot of CDH awareness!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  9. 04-08-2010, 09:15 PM #9
    mskelly
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    WOW!!!! That's amazing!!!
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
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  10. 04-16-2010, 07:09 AM #10
    LynneB
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    Of course I cried! i LOVE the begining when it talks about our "little Bear cub". Well done.
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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