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Thread: Who is going to Orlando?

  1. 04-15-2010, 08:37 PM #1
    KarlaHolt
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    Who is going to Orlando?

    Post here if you are going to the conference in May!

    Dave and I will be there with Brooke and Braden (ages 6 and 2)! We can't wait!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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  2. 04-17-2010, 10:03 PM #2
    mskelly
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    I'm going to be there with Nyah & Landon and my mom is coming to help me with the kids!

    So excited!!
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
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  3. 04-18-2010, 06:54 PM #3
    JenniferTenney
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    I am coming with Dakota (16 months) .... I can't wait to meet you guys in person!!!!
    Mom to Dakota Tenney- born 12-25-08 (RCDH). Diagnosed at 29 weeks. Born 7 weeks and 2 days early (32 weeks and 5 days). She is my Christmas gift and I am never giving her back. ECMO three days. Surgery on Day 13. Home on cannula oxygen 2-25-2009. Off oxygen 3-31-2009. No feeding tube yet *knock on wood*. Hard to feed and still a skinny little girl- but we are working on it!
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  4. 04-18-2010, 07:26 PM #4
    KarlaHolt
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    Yeah! I'm so excited!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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  5. 04-18-2010, 09:11 PM #5
    AmyMiles
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    We just booked our tickets! Amy and Abby (10 months) Miles
    Dan and Agnes Grace my parents
    Jennifer Grace and Lou Miller
    Taylor Herington my nephew 13 yrs old
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
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  6. 04-19-2010, 08:02 AM #6
    LynneB
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    i really want to come but it does not look favorable!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
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  7. 04-19-2010, 08:31 AM #7
    JessicaPayne
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    I'm with lynne on this one. I would love to make it but it doesn't look favorable!
    Son went 5 yrs 11 months undiagnosed with CDH. Presented itself as stomach pains so bad he was doubled over in pain. Went to local ER where they gave him pain medication and took x-rays. Once x-rays were looked at was asked if he had x-rays taken at any other time (at 2yrs old- nothing was detected). We were transferred to Janet Weis Childrens Hospital in Danville- PA. Several x-rays and hours later he was taken to surgery. Diaphragm sewn shut and feeding tube placed to help keep stomach in place. Initial stay was 6 days- came home and feeding tube came out. Rushed back to Danville and they removed feeding tube and another 4 day stay to heal.
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  8. 04-19-2010, 08:42 PM #8
    Dawn Torrence Ireland
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    I will be there! Possibly with my mom, but most likely alone (Craig has work and the boys can't get out of school and baseball).
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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