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If we were to have a "Parade of Cherubs" (cherubs in wings) In Washington DC in April to raise awareness of our CDH and gain support for our CDH Research Bill, how many of you would attend?
We would have to do it on a week day (when Congress is in session). Maybe make it a long weekend?
We could have a parade down the length of the Mall and invite media to attend. Us parents could wear awareness shirts and the kids wearing wings.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I would attend! Tell me the date asap so I can get a personal day off from work.
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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