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Thread: New 2011 CDH Awareness Video

  1. #1

    New 2011 CDH Awareness Video

    We're updating last year's video with more photos and a new song (written by the brother of a cherub).

    Please submit your photo by today to membership@cdhsupport.org

    Make sure to include your cherub's full name!

    The video will be posted tomorrow.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Is it too late to submit a photo? If not so I can let a couple of my CDH mom's from Texas!!!

  3. #3
    I can't wait to see it!!
    Mommy to Mallory Miracle May Givent, born Jan 4th 2010 at Boston Childrens Hospital, home on July 14th 2010!
    Mally went on ecmo for 10 days at a week old, had her repair while on ecmo. Had a nissen Fundoplication and gtube done in May 2010. Mally has many obstacles, she has pulminary hypertension, scoliosis, and amblyopia. As well as developmental delays due to months of sedatives, and paralytics. But even with all her troubles, she is still an amazingly Happy Baby
    Mally Has two wonderful older siblings Mark, and Clara. Mally thinks the world of them and they take great care of their baby sister.

  4. #4
    Is the video online yet? Where?
    Parents of Noah (6) and our Cherub Kayley (20mos) - LCDH diagnosed at birth; repaired laproscopically; recurred at 12 months and repaired with an open incision; GERD; feeding issues http://i1134.photobucket.com/albums/...ibbonSmall.png

  5. #5
    http://www.youtube.com/watch?v=pbdoOxh4Sbs is the link to the new vdeo.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  6. #6
    http://www.youtube.com/watch?v=pbdoOxh4Sbs is the link to the new vdeo.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

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