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Thread: 2012 Conference - Help us Decide

  1. 01-04-2012, 04:42 PM #1
    Chris and TracyMeats
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    2012 Conference - Help us Decide

    https://www.facebook.com/groups/1837.../cdhconference

    There is a link on facebook to help us decide where to hold the CDH conference. The locations are West Coast, due to the fact the CDH conference has been on the East Coast the past few years. Please vote if you are interested in attending. Follow the link above and look for the post on how to vote. The locations are:

    Rapid City, SD
    San Diego, CA
    San Francisco, CA
    Salt Lake City, UT
    Seattle, WA

    We are using facebook to take this poll, for we are trying to pull interest in attending this conference and get even more families to attend. Come on West Coasters....put your vote in if you can possibly make one of these locations.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  2. 01-04-2012, 05:54 PM #2
    Dawn Torrence Ireland
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    Thank you for posting this, Tracy!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  3. 01-04-2012, 09:57 PM #3
    KarlaHolt
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    I'm voting for San Fran because I have family there but honestly don't think I will be able to attend unless it's just me or me and the hubby.
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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  4. 01-05-2012, 09:38 AM #4
    JenniferTenney
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    I have had a wonderful, amazing time at the conference the last two years and have been lucky enough to have it in my home state of Florida (only a four hour drive for me). I totally understand it needing to be on the West Coast this year to give others a chance to attend. I probably won't be able to make the trip this year but I just wanted to encourage everyone who can to go because it was so much fun!
    Mom to Dakota Tenney- born 12-25-08 (RCDH). Diagnosed at 29 weeks. Born 7 weeks and 2 days early (32 weeks and 5 days). She is my Christmas gift and I am never giving her back. ECMO three days. Surgery on Day 13. Home on cannula oxygen 2-25-2009. Off oxygen 3-31-2009. No feeding tube yet *knock on wood*. Hard to feed and still a skinny little girl- but we are working on it!
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  5. 01-05-2012, 02:32 PM #5
    PamelaMcHan
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    I'm sure if I go it will be alone or just with my husband. I have too many kids to fly with (unless it is SLC) and they all have stuff this summer that they are obligated to do. I might get brave enough to bring Sawyer, but I'm not sure. All I am sure about is that I really want to attend this year.
    Pamela-mom to Sawyer 6 1/2 yrs. LCDH repair @ 5 days- PPH-resolved-oscillating vent 12 days- reg vent 7. Home @ 30 days- no O2- breastfeeding- doing much better than expected. Dx with spastic di/quadriplegia cerebral palsy @ 17 months. Has reherniated 2x's. 1st-hiatal hernia (repaired @ 25months) 2nd-paraesophageal hiatal hernia (current) needs surgery to repair- but we are waiting on it!! Has 7 bros and sisters who adore him. Nonverbal- somewhat ambulatory. Very naughty- but that's the fight in him shining through!!!!
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  6. 01-05-2012, 11:57 PM #6
    TracyLanders
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    I would LOVE to go but the West Coast is just too far away. I think working out the details would be too tough right now. I seriously can't wait until I can go...
    Mommy to a Miracle: Ericka Elizabeth (3.18.2009)-LCDH diagnosed in utero at 29 weeks- Venitlator- Nitric Oxide- Repair surgery at 13 days- Venous Venous ECMO at 16 days- Venous Arterial ECMO at 21 days- came off ECMO at 36 days- off oxygen support at 84 days- G-tube surgery at 78 days- home at 100 days..FINALLY! I'm so proud of her and all the progress we have made! All meds and g-tube DC'd on May 5th- 2010. She's still a skinny minny but she's healthy and happy! She's amazing!
    ERICKA'S JOURNEY: http://www.onetruemedia.com/shared?p...39&skin_id=801 www.myspace.com/tracy_leigh
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  7. 01-14-2012, 06:35 PM #7
    RobynTinker
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    We wont be able to attend this year but are already talking about putting money away from next year.Denver,Co would be a great place to hold it.Just a thought.
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  8. 01-14-2012, 07:19 PM #8
    Dawn Torrence Ireland
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    Denver is a high altitude city and many cherubs having trouble breathing at high altitudes.

    San Francisco won the vote! We are sorting out details and will post them soon. We are looking for local volunteers!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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