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Thread: Just got my bag!

  1. #1

    Just got my bag!

    I cannot say thank you enough for the wonderful surprise of the tote bag! So often in our brief journey (we found out about Parker's LCDH on 12/21 at 17 wks) I have felt overwhelmed, lost, and alone... the CHERUBS community has helped so much! What a wonderful wealth of information, as well as a truly thoughtful thing to do, for expectant parents. Thank you thank you thank you!

  2. #2
    (((HUGS)))....you are so welcome! The bag is full of love and hope for Parker!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  3. #3
    Welcome to CHERUBS.
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

  4. #4
    I wanted to also say welcome to CHERUBS.


    Freedom Green, Mommy to Kylee Freedom Green, 10/4/00 –10/5/00, LCDH with multiple congenital anomalies including diaphragmatic hernia & heart defects, two vessel cord & Trisomy 18, And m/c in Dec. 01, Joseph Martin Green III born 2/10/03, Skyla Green born 3/08/04, Chloe Green born 01/19/06, Elodie Green born 02/02/09.

  5. #5
    Welcome to CHERUBS! We are here for you.
    Ashley Barry Mom to CDH survivor Jessica and younger sister Leah
    Vice President CHERUBS board

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