Stay Connected

Results 1 to 5 of 5

Thread: Totebag thanks

  1. #1

    Totebag thanks

    We received our totebag about two weeks ago. My husband and I were touched by the donations inside. It was truly a wonderful gesture to know others were concerned about our baby. I just saw there was a posting forum for this and wanted to send our gratitude. Our baby Caroline is due October 14th so I know those items will be useful in the coming weeks.
    Thank you,
    Shawna Tillery
    Greensboro, NC

  2. #2
    So happy to hear the totebag brought some comfort to you and your husband. You are not alone and we cheering your baby Caroline on!!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  3. #3
    So glad you were able to get a totebag! I hope it will be a great resource for you!!
    Shelly Moore
    CHERUBS Oregon Representative and Oregon Hospital Angel
    CHERUBS Prayer Committee Member
    CHERUBS Parental Advisory Board Member (2013-2015)
    Email: oregon@cherubs-cdh.org
    Facebook: http://www.facebook.com/Teckiemom

    Grandmother to cherub angel Jayden, the only son to my born to youngest daughter, Alicia.

    Jayden was diagnosed with CDH at his 17 week ultrasound with severe LCDH, stomach, intestines up as well as having polycystic kidneys. He was born February 19, 2010 at 36 weeks gestation.

    Jayden spent 7 days on ECMO after which he was working on gaining strength for surgery when his polycystic kidneys started failing at about day 15, totally failing by day 19.

    Jayden spent 4 days on dialysis before gaining his wings on March 14, 2010 at age 23 days.

    Remembering Jayden - A Family's Journey in Coping with Loss to CDH
    http://rememberingjayden.blogspot.com/

    Jayden's CDH Story 2/19/10 - 3/14/10
    http://www.youtube.com/watch?v=0fKsAsMS_ZA

  4. #4
    It was a wonderful resource!

  5. #5
    Yeah- glad you got your totebag! Still rooting for you from Morrisville, NC.
    Last edited by ashleybarry; 09-28-2012 at 09:10 AM.
    Ashley Barry Mom to CDH survivor Jessica and younger sister Leah
    Vice President CHERUBS board

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •