Prenatal Steroids??

[Megan Smith-Weedon]

Wish we had that option with Alyssa 8 years ago. Who knows if it would have helped or not though right!? But I agree it can't hurt to try. I hope it all works out well! We take Alyssa to the Pulmonologist in 2 weeks for a Lung Growth and Function test. She was only born with 1/4 of the left lung.

[ReneeB]

Michele, how are you doing? Would love any update your able to provide.

[Rose Luna]

This is just my opinion i don't kno if it will affect anyone in anyway and if I offend I'm sorry don't mean to. My son was not diagnosed in while I was pregnant. I had many problems with my pregnancy and was advised to terminate. Because my son was going to be so sick they believed at the time that he had spina bifida that I would be allowed to terminate up 6 months gestatinal age. I refused to terminate but was still seeing reg dr endocrinologist for my diabetes and thyroid problem maternal fetal dr and cardiologist for baby while I was pregnant

. They knew something was wrong but they thought like I said it was spina bifida. I was often in the hosp because my son wouldn't do breathing reflexes when he was supposed to be doing them. Long story short they decided to get him out 3 weeks early. He was due 12/25/2009 but had so many problems drs got together and decided it would be easier to take cAre of him outside than inside so we planned the c section for 12/03/2009. I received steroids for his lungs everything went as planned.

He was born and had bit of trouble crying when he was born but that's it. Other than that a perfectly healthy normal baby who was not in the nicu and no spina bifida. Really at this point I had been scared about all his issues I expected to have a 1. Eyed 1. One arm 1. Legged baby. Really I had been really scared because of what I had been told. We went home Nd had no major issues. He got rsv when he was about a year And had some nebulizer treTme ts because he had gotten sick several times. Then when he was a year and four months he got real sick with pneumonia rsv and flu. That's when they found his CDH.

I honestly in my heart believe the steroids saved his life. At this point I don't know if we would have had a different outcome had we not had the steroids and I don't even want to think about what would have happened had he not had them. In my heart I believe that's what saved his life. I could be wrong but it's my opinion and we will never know other wise. I cry myself to sleep sometimes thinking what if what if I had had a normal pregnancy and had never gotten the s

[MSengsourya]

Rosa,

Thank you for sharing your experience and this is certainly the place to do it. I'm so glad your lil man is doing good!

2 doctors recommended termination to me. But that's not who I am and I refused to honor her life that way. At 20 weeks the specialist gave her a .69 lung to head ratio. Which as we all know on here is severe. At 34 weeks her LHR was 1.0. And at 36 weeks it was 1.35. My amniotic fluid went from 25.6 to 24.6. You could see her practicing breathing and yawning. My Dr was pleased with the growth, I could see it on his face. She weighed in at 7lbs 1oz. He said that we can expect ECMO but this improves her chances. I told him between me, him, the specialist and God anything is possible. He gave me the biggest hug.... I won't ever forget that feeling!

I believe my sweet girl is already teaching the lives she is touching.

Michele

[MSengsourya]

Renee ,
I will put my latest update on my initial thread.

Michele