Stay Connected 
Boston Parade
On Facebook - https://www.facebook.com/events/429436317126141/
Register on Eventbrite - http://cdhawarenessday-2013boston.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
50% of money raised will be donated to the CDH Genetic Study Program at Mass General
Contact Tracy & Marie with any questions about this event
Look forward to seeing the pics from our Boston Parade of CHERUBS!!! Boston will be a happening place for CDH awareness this year!!! Look for more excitement and news about the upcoming CDH conference in Boston!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Many thanks for everyone's hard work on getting this set up. Have a great day and looking forward to hearing all about it.
Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla (, Chloe ( 6 ) & Elodie ( 3 )
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