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Las Vegas 51's Baseball
On Facebook - https://www.facebook.com/events/417568614987091/
Register on Eventbrite - http://cdhawarenessday-2013lasvegas.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
Purchase game tickets - http://lasvegas.51s.milb.com/index.jsp?sid=t400
Contact Patricia with any questions about this event
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Sounds fun!!! Good luck for a good night!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Jill and I have been working hard on setting this event up. I am hoping to get more Las Vegas families involved. We have about 20 people confirmed as attending our event that number is not including the seats that Jill's job is buying for all of their corporate employees. I am in need of Las Vegas families to help work the event table and will call booth.
Sound like a great event. Thank you for doing this. Have a great night. Can't wait to see pictures
Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla (, Chloe ( 6 ) & Elodie ( 3 )
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