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Phoenix, AZ Parade
On Facebook - https://www.facebook.com/events/252034254927636/
Register on Eventbrite - http://cdhawarenessday-2013phoenix.eventbrite.com/
Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
50% of money raised will be donated to DHREAMS for CDH
Contact Somer or Stephanie with any questions about this event
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Our parade is still being worked on location wise, but Somer and I have been working very hard on making this a very educational CDH experience. We will have to speakers on CDH and do a march! We are also doing a silent auction to raise money for our event, so please feel free to check it out and place your bids! https://www.facebook.com/events/469993306387647/Originally Posted by Dawn Torrence Williamson
To tell you a little about myself. This year I am 24 years old and I am a CDH survivor. I have a child of my own who is 3 this years, he was born healthy but my whole pregnancy I had to be checked to any complications. I was born with LCDH with a 20% survival rate. I went into surgery at an hour old with 6 months in the hospital recovering. I have had a few things that still today effect my everyday activities. I get random chest pains that no doctor has been able to say what it is, I get heart burn that effects my breathing, and makes me lose my food, I also can't play sports for very long for the fact that my lung is still under developed. Please feel free to ask me any questions.
Stephanie Tolley
AZ State Rep
Thank you Stephanie!!! Look forward to seeing pics from the event! Do go look at the silent auction items....very neat things have been added!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Many thanks to all who have worked so very hard to get this event set up. I wish you all a wonderful day. Can't wait to hear how your speical event day turned out.
Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla (, Chloe ( 6 ) & Elodie ( 3 )
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