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Thread: S.Res. 85: A resolution designating April 2013 as “National CDH Awareness MONTH"

  1. #1

    S.Res. 85: A resolution designating April 2013 as “National CDH Awareness MONTH"

    On March 20, 2013 Senator Jeff Sessions (R-AL), along with Senator Ben Cardin (D-MD) introduced
    S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month” in the United States Senate.

    On the same day, it was passed.

    Yes, you read that correctly! The United State Senate has designated April 2013 as National Congenital Diaphragmatic Hernia Awareness Month! It also calls for more research of CDH.

    http://www.govtrack.us/congress/bills/113/sres85

    A full press release and text of the Resolution will be posted shortly.

    Now, our job is not finished here. We still have work to do and are still rallying the troops to get through the U.S. House as well. Our push is not just for awareness but for research!

    This new development has turned our Washington DC Parade around and we are scrambling to schedule meetings with members and their Representatives in the House.

    This has also turned all of our Parades of Cherubs across the country into celebrations as well!

    We are still collected Proclamations from states and cities as ways to raise even more awareness locally so keep those coming!

    This is very exciting time for the entire CDH Community and CHERUBS is honored to work with Senator Sessions, Senator Cardin and all of the incredible people who have supported this effort, signed the petitions, written letters, posted on social media and worked diligently to raise awareness and researching funding for Congenital Diaphragmatic Hernia.

    The war against CDH is far from over, but today we celebrate a very big victory in a very large battle. Well done, everyone!

    For more information on how you can help obtain proclamations, contact your Representative or participate in a parade or other event on April 19th please visit http://www.cdhawarenessday.org
    Attached Images Attached Images
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects. Founder and President of CHERUBS.

  2. #2
    This is wonderful!

  3. #3
    How cool is that!!! Way to go CHERUBS!!!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  4. #4
    Awesome, awesome, awesome news!!!!! Nice work everyone.
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )

  5. #5
    This is wonderful!!!!

  6. #6
    Great news! Has the press release been issued yet? Is there an article we can provide to our local papers to help with CDH awareness in association with the National CDH Awareness Month?

  7. #7
    Awesome news. Thanks for sharing this important information.

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