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Thread: Soria, Riley Nicole

  1. #1

    Soria, Riley Nicole

    I found out I was pregnant towards the end of 2007 shortly after finishing school. The beginning of my pregnancy seemed normal, like any other normal pregnancy would. When I was 20 weeks along I had my first ultrasound, where we were so anxious to find out the sex. Instead we found out that our baby had something wrong. I was referred to high risk specialist in Virginia and continued my care there for the remainder of the pregnancy. They informed me that our baby had CDH. We had no idea what that was and spent the next several months researching and learning everything we could about it. There was, of course, no way of knowing what was going to happen. I had many ultrasounds and stress tests done, nothing seemed to worsen, but nothing was getting better either. I was told I would have to give birth at another hospital in case we needed the ECMO machine. While her father and I were at home putting her crib together in anticipation to bring our sweet girl home, we got the call that the doctors wanted us to travel to Duke to be induced there. I was only 37 weeks, but they did not want to risk me going into labor on my own and not being able to get her the help she might need on time. We got to the hospital on May 14th 2008 around 6pm where they started the induction. I stayed in labor for an entire day before I was dilated enough to start pushing. I was wheeled into the OR to deliver, and after only 30 minutes of pushing this beautiful 5 lb 15 oz little girl was born. She was immediately taken to another room, and we later found out she had to be placed on the ECMO machine, or she would not have made it through the night. She fought for two weeks and did very well until she was able to be weaned off. For the following two weeks she remained on a jet ventilator where she continued to fight. On June 13th, after a month of holding our breaths, we realized that Riley would never be strong enough to endure the surgery that she needed. She was removed from all machines where she peacefully slipped away in her mothers arms around 1:00 AM on June 14th 2008.

    -Alex Bundy, Rileys mom. North Carolina
    Attached Images Attached Images

  2. #2
    Alex, thank you for sharing Riley's story. She sounds like she was quite the fighter and I'm sorry for your loss.

  3. #3
    Beautiful precious little girl. Thank you for sharing your angel with us. (((HUGS))). We are here for you.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  4. #4
    I am so sorry for the loss of your sweet Riley.
    Induced at 40 weeks. Henry Davis Williams was born 11-13-12, 6lb 10oz. Henry passed away a few hours after birth. Although the doctors cannot give us a concrete answer why he passed, it was not due to cdh. Henry had a very severe case of metabolic acidosis and had fryns syndrome. (Due 11-10-12. CDH diagnosed at 22 weeks. Left side, bowels up, heart pushed over, clubbed feet, one port cord. Delivered at university hospital in Cleveland, OH)

  5. #5
    Sending the whole family love, strength & peace. Love The Green family in Maryland. Thank you for sharing your story with us all. Hugs from MD.
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )

  6. #6
    Bless her sweet little baby girl heart. Thank you for sharing your story.

    Alyssa~ 7/19/2004; LCDH- ECMO 11 days (VV 5 days)- (VA 6 days)-To date, the only Double ECMO Case at Helen DeVos Children's Hospital, Vent 19 days- Osc. Vent 1 day- Jet Vent 1 day- Oxygen 20 days. 64 days in the NICU, came home on NG tube, continuous drip feeds. 02/28/2005 Fundoplication and G-tube placed.

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