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Thread: 2013 PA, NJ, DE CHERUBS Picnic!

  1. #1

    2013 PA, NJ, DE CHERUBS Picnic!

    Annual PA, NJ, and DE Picnic!!

    When: August 17, 2013

    Where: Nockamixon State Park, 1542 Mountain View Drive, Quakertown, PA

    Time: 11am-4pm

    Food will not be provided. Families should pack picnic lunches / drinks for the day. Bring / wear bathing suits for water play. There is a pool for use if interested. (Last year it was $7 for adults).

    Facebook event page: https://www.facebook.com/events/178598172314876/

    Please contact our PA, NJ and DE rep., Karla Holt, at kholt@cherubs-cdh.org with any questions you may have or if you are planning on attending!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  2. #2
    Thank you and have a great day everyone!
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )

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