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Thread: $10,000 CDH Research Grant Contest

  1. 12-01-2013, 06:42 PM #1
    Dawn Torrence Ireland
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    $10,000 CDH Research Grant Contest

    VOTING HAS BEGUN! Vote once a day, every day until December 30th for your favorite CDH organization to win $10,000!

    https://www.facebook.com/cdhsupport/app_303561899745219

    23 CDH Research Centers from around the world in the running to win a $10,000 Research Grant to the center with the most votes on December 30th.

    Who are you voting for?

    Baylor College of Medicine CDH Genetic Lab (genetic research)
    Boston Children's Hospital CDH Clinic (repair material research)
    Cincinnati Children's Hospital and Medical Center (surgical repair)
    DHREAMS Research Study (Congenital Diaphragmatic Hernia) Lab (genetic research)
    Mass General CDH Genetic Research Study (genetic research)
    OSF St. Francis Medical Center (CDH Clinic)
    Shands at the University of Florida CDH Clinic (gentle ventilation research)
    St. Louis Fetal Care Institute (fetal research)
    Texas Children's Hospital (fetal research)
    The Center for Fetal Diagnosis and Treatment at CHOP (fetal research)
    UCSF Fetal Treatment Center (fetal research)
    International CDH Study Group (long term CDH care)
    Sydney Children’s Hospital (Australia)
    Universitätsklinikum Mannheim gGmbH (Germany)
    Université Paris Descartes (France)
    Ospedali Pediatrico Bambino Gesu (Italy)
    University Hospital Gasthuisberg (Belgium)
    The Hospital for Sick Children (Canada)
    National Center of Child Health and Development (Japan)
    Sophia Children’s Hospital (Netherlands)
    Liverpool University (United Kingdom)
    University of Oxford (United Kingdom)
    Scottish Congenital Diaphragmatic Hernia Clinical Network (Scotland)
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  2. 12-03-2013, 02:58 PM #2
    Chris and TracyMeats
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    Please vote!!!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  3. 12-04-2013, 06:08 AM #3
    freedom
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    I voted and it only takes a min. Super fast. make sure to place your vote today!
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )
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  4. 12-07-2013, 06:15 PM #4
    ShellyMoore
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    I have too folk on my wall saying they having issues voting on mobile.
    Any suggestions?

    Shelly
    Shelly Moore
    CHERUBS Oregon Representative and Oregon Hospital Angel
    CHERUBS Prayer Committee Member
    CHERUBS Parental Advisory Board Member (2013-2015)
    Email: oregon@cherubs-cdh.org
    Facebook: http://www.facebook.com/Teckiemom

    Grandmother to cherub angel Jayden, the only son to my born to youngest daughter, Alicia.

    Jayden was diagnosed with CDH at his 17 week ultrasound with severe LCDH, stomach, intestines up as well as having polycystic kidneys. He was born February 19, 2010 at 36 weeks gestation.

    Jayden spent 7 days on ECMO after which he was working on gaining strength for surgery when his polycystic kidneys started failing at about day 15, totally failing by day 19.

    Jayden spent 4 days on dialysis before gaining his wings on March 14, 2010 at age 23 days.

    Remembering Jayden - A Family's Journey in Coping with Loss to CDH
    http://rememberingjayden.blogspot.com/

    Jayden's CDH Story 2/19/10 - 3/14/10
    http://www.youtube.com/watch?v=0fKsAsMS_ZA
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  5. 12-10-2013, 01:13 PM #5
    FeleciaWoodruff
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    Add your own photo holding a sign asking for votes for your favorite CDH hospital!

    cdh hospital.jpgcdh hospital2.jpg
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
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  6. 12-10-2013, 01:17 PM #6
    FeleciaWoodruff
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    If anyone needs any help making graphics let me know. I made two with my son Bryson's photo on them.
    cover.jpgchop.jpg
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
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  7. 12-10-2013, 05:11 PM #7
    Dawn Torrence Ireland
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    Thanks Felecia!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  8. 12-18-2013, 11:11 AM #8
    FeleciaWoodruff
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    The Children's Hospital of Philadelphia's newsletter features CHERUBS CDH Research Grant in it.

    http://us2.campaign-archive2.com/?u=...3&e=ead07d42c0
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
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  9. 12-18-2013, 11:41 PM #9
    PatriciaH
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    I have been voting.
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  10. 12-21-2013, 09:10 AM #10
    freedom
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    Thank you all for voting!
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )
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