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Thread: 2013 National Children's Memorial Day Virtual Candle Lighting

  1. #1

    2013 National Children's Memorial Day Virtual Candle Lighting

    Our homepage is temporarily modified in remembrance of National Children's Memorial Day on December 8th.

    http://www.cherubs-cdh.org

    Candles will be lit at 7:00 pm in all time zones so that there will be constant light around the world in memory of our children in Heaven.

    The 2013 National Children's Memorial Day is Sunday, December 8th. At 7:00 pm in each time zone, people will be lighting candles to remember all children lost.

    The World Census Bureau estimates that in 2008 over 350,000 babies were born in the world every day = 147 babies will be born with CDH every day. That is OVER 53,000 BABIES BORN EACH YEAR WITH CDH. Over 26,000 do not survive. Help CHERUBS fight CDH.

    Over a half million babies have been affected by Congenital Diaphragmatic Hernia since 2000. This means that over a quarter of a million babies have have been lost to this devastating birth defect. Over 800 babies are lost to CDH in the United States alone each year.

    CHERUBS has participated in NCMD for over a decade. We remember all the families who mourn their children from Congenital Diaphragmatic and those who mourn their children lost from other circumstances.

    This week our web site home page will go black in memory of those cherubs lost as we list every child in membership lost to CDH. It remain this way until December 11th. This is our solemn tribute to those cherubs with wings as well as our way to bring awareness to the many children lost to CDH.

    If you would like your cherub's name added or removed, please e-mail us at login@cherubs-cdh.org Members names will automatically be included. Please contact us if you do not want your cherub's name listed. Please make sure to have your membership form (profile) updated with your cherub's name and status if you have recently lost your cherubs.

    This year we are doing something to raise more funds for the cause. Every cherub has 1 candle lit beside his/her name. Family and friends can light more candles in his / her memory. Please make sure to give us the cherub's name as you donate.

    Every $5.00 donated in memory of cherub lights another candle beside his/her name.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Thank you for all your hard work putting this together!!!

    Shelly Moore
    Shelly Moore
    CHERUBS Oregon Representative and Oregon Hospital Angel
    CHERUBS Prayer Committee Member
    CHERUBS Parental Advisory Board Member (2013-2015)
    Email: oregon@cherubs-cdh.org
    Facebook: http://www.facebook.com/Teckiemom

    Grandmother to cherub angel Jayden, the only son to my born to youngest daughter, Alicia.

    Jayden was diagnosed with CDH at his 17 week ultrasound with severe LCDH, stomach, intestines up as well as having polycystic kidneys. He was born February 19, 2010 at 36 weeks gestation.

    Jayden spent 7 days on ECMO after which he was working on gaining strength for surgery when his polycystic kidneys started failing at about day 15, totally failing by day 19.

    Jayden spent 4 days on dialysis before gaining his wings on March 14, 2010 at age 23 days.

    Remembering Jayden - A Family's Journey in Coping with Loss to CDH
    http://rememberingjayden.blogspot.com/

    Jayden's CDH Story 2/19/10 - 3/14/10
    http://www.youtube.com/watch?v=0fKsAsMS_ZA

  3. #3
    Thank you Dawn for your dedication to Cherubs and all you do for our CDH Babies.

  4. #4
    Let us know if you don't see your baby listed or have questions.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  5. #5
    Dawn - The page looks great. You do a wonderful job.
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )

  6. #6
    Bumping this up!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  7. #7
    Cherubs are like snowflakes, no two the same. Light a candle in memory of your cherub or catch a virtual snowflake in honor of your cherub on our web site until December 31st. http://www.cherubs-cdh.org/. We have now added snowflakes.

    Light a virtual candle in memory of your cherub here - http://www.cherubs-cdh.org/awareness...07-29-20-06-27...

    Catch a snowflake in honor of your cherub here - http://www.cherubs-cdh.org/awareness...07-29-20-06-27...

    If you don't see your child's name listed or see a mistake, please let us know, cpab@cherubs-cdh.org. If you update your profile or make changes, please notify us that is was done so we can get your son or daughter listed. We are not scanning the database for these updates, so please send us an email.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  8. #8
    I have purchased my snowflake! Awesome idea and a great way to pay tribute to our cherubs.

  9. #9
    Thank you Patricia!
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )

  10. #10
    Wahoo! Bryson now has 7 snowflakes. this is such a great idea!
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member

    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org

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