Very cute. I like Josh's idea.
Stay Connected 
Stay Connected
Very cute. I like Josh's idea.
Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla (, Chloe ( 6 ) & Elodie ( 3 )
I agree with josh. A contest would be super cool!!
Just so everyone knows too, smilebox.com has the CDH ribbon on their website so you can make free custom Facebook awareness cover photos. Here is one that I made. Very quick and easy.
you never know.jpg
Felecia Marie Woodruff- CHERUBS Volunteer
Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
My Facebook page: https://www.facebook.com/felecia.woodruff
Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
Didn't know that! I have smilebox on my laptop!! Gonna play around with that when I get home!!
Cool! I use smilebox a few times a year. I'll have to check that out at some point.
Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla (
I have smilebox too.
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
Apparently I'm going to have to check out this smilebox...never heard of it!
Father to Evie Nanette and Allyson Belle. Evie diagnosed with LCDH and passed away 14 hours after birth. Allyson diagnosed with LCDH- spent 4 months in NICU- 3 hernia repairs- on feeding tube and oxygen until she passed away at 15 months. CHERUBS Parent Advisory Board Member, Co-Volunteer Coordinator, and Utah State Representative.
That's ok Josh your not the only one, I have never heard of smilebox either.
Felecia Marie Woodruff- CHERUBS Volunteer
Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
My Facebook page: https://www.facebook.com/felecia.woodruff
Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
Felecia Marie Woodruff- CHERUBS Volunteer
Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
My Facebook page: https://www.facebook.com/felecia.woodruff
Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
Posting Permissions
Reply With Quote