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Thread: April 19th, 2014~ The International Day of Congenital Diaphragmatic Hernia Awareness

  1. 01-20-2014, 07:32 PM #1
    FeleciaWoodruff
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    April 19th, 2014~ The International Day of Congenital Diaphragmatic Hernia Awareness

    We need your help!

    This is our CDH Awareness Day proclamation map from 2013. Not all the years together, just 1 year! We did an amazing job in 2013 with proclamations, parades, media, baseball night, lighting buildings, Senate & House Resolutions and more!

    2014 is going to be even BIGGER with your help!!!! We are off to a great start already with 3 states, 8 towns, 2 billboards and events being planned around the world!

    Please help CHERUBS and all the charities in the Alliance of Congenital Diaphragmatic Hernia Organizations - ACDHO as we work together on April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness by writing your governor and mayor asking for a proclamation. Help us raise CDH Awareness. Honor your cherub. More awareness = more research = more lives saved.

    If you want to help, please email Neil at NRubenstein@cherubs-cdh.org. 2013 Proclamations .jpg
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
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  2. 01-20-2014, 09:07 PM #2
    Chris and TracyMeats
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    Thank you for posting Felecia!!! Please ask how you can help, any of you can help from your own home!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  3. 01-21-2014, 02:55 PM #3
    freedom
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    Thank you Felecia!
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )
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