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Thread: Upcoming April Events for CDH Awareness - CDH Awareness Day, April 19th!!!

  1. #1

    Upcoming April Events for CDH Awareness - CDH Awareness Day, April 19th!!!

    April 12th

    •CDH Awareness Walk and Easter Egg Hunt - St Louis, MO
    •Shands @ UF CDH Awareness Parade - Gainesville, FL


    April 18th

    •2014 CDH Awareness - Portland, OR


    April 19th

    •CN Tower Lighting - Toronto, Canada
    •CDH Awareness Ziplining Fundraiser - Bethesda, UK
    •Dublin City Hall Lighting - Dublin, Ireland
    •RSA Battle House Tower Lighting - Mobile, AL
    •Baby B.L.U. 5K Race - Haleyville, AL
    •CDH Awareness Day Event - Mesa, AZ
    •Applebee's CDH Awareness Night - Fresno, CA
    •Miami Tower Lighting - Miami, FL
    •City Place Building Lighting - Palm Beach, FL
    •SunTrust Building Lighting - Tampa, FL
    •Ava's April Shower - Oakland, IL
    •Superdome Lighting - New Orleans, LA
    •CDH Awareness at Midcoast Pizza & More - Bath, ME
    •Wells Fargo Duke Energy Building Lighting - Charlotte, NC
    •April Showers for CDH Babies - Wake Forest, NC
    •Spin For CDH Awareness - Wilmington, NC
    •Parade of Cherubs - Portland, OR
    •PECO Building Lighting - Philadelphia, PA
    •4 CBS Outdoor Billboards- Philadelphia, PA
    •ONE Liberty Place Building - Philadelphia, PA
    •CDH Awareness at the Philadelphia Zoo - Philadelphia, PA
    •Carnegie Science Center Lighting - Pittsburg, PA
    •Terminal Tower Lighting - Cleveland, OH
    •Hike the Hill for Congenital Diaphragmatic Awareness - Chesterton, OH
    •CDH Awareness Egg Roll - Columbus, Ohio
    •Vance Thomspon Vision Lighting - Sioux Falls, SD
    •10 Billboards - South Dakota
    •Salt Lake Bees Baseball CDH Awareness Night - Salt Lake City, UT


    April 26

    •CDH Awareness Night with the Las Vegas 51's - Las Vegas, NV
    •2014 Day of CDH Awareness Texas Picnic - Dallas, TX


    If you have questions on any of these events, please let the CPAB know, cpab@cherubs-cdh.org or post here and I will give you the representatives contact info. or the member holding the awareness event.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  2. #2
    So much awareness for CDH! Thank you everyone!!!!!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

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