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Many thanks to all those who organised the Dublin CDH Conference. I am so grateful to you all for helping to raise CDH awareness in Ireland. It encouraged so many of us to make a greater effort to seek better outcomes for our children and to do all we can to ensure that people become better informed about this condition and the struggles faced by CDH families.
The sense of welcome and support was simply overwhelming.
That's great! I've been to several conferences here in the US and it's always awesome to meet other families. The pictures looked amazing and I'm so jealous of all that got to go!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
So happy to hear it was great! It is always great to meet other families and doctors/researchers. Sure wish I was able to attend and meet you all that attended, the pictures coming in are amazing!
CHERUBS is always here for you!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
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