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Don't forget, CHERUBS will be in NYC on Friday, August 29!
Come on out and raise CDH Awareness!
5:00 am in Times Square - Holding up posters, wearing wings, standing in the crowd at Good Morning America trying to raise CDH Congenital Diaphragmatic Hernia Awareness
5:00 pm on Wall Street - ringing the closing bell at the New Stock Exchange (Tickets are SOLD OUT)
More information on this event can be found here: https://www.facebook.com/events/438182106325554/
Felecia Marie Woodruff- CHERUBS Volunteer
Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
My Facebook page: https://www.facebook.com/felecia.woodruff
Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
So exciting! Wish I could be there! Take lots of pictures and have an awesome time!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
Everyone have a great time. Way to go Cherubs!
Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.
See the pics being uploaded to our facebook page today! Pretty awesome!!!
Love seeing the CDH awareness happening today in New York!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
It was AWESOME!!!!!! My feet are still killing me but it was def worth it!
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