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Thread: 2014 National Children's Memorial Day Virtual Candle Lighting

  1. #1

    2014 National Children's Memorial Day Virtual Candle Lighting

    Our homepage is temporarily modified in remembrance of National Children's Memorial Day on December 14th.

    http://www.cherubs-cdh.org

    Candles will be lit at 7:00 pm in all time zones so that there will be constant light around the world in memory of our children in Heaven.

    The 2014 National Children's Memorial Day is Sunday, December 14th. At 7:00 pm in each time zone, people will be lighting candles to remember all children lost.

    The World Census Bureau estimates that in 2008 over 350,000 babies were born in the world every day = 147 babies will be born with CDH every day. That is OVER 53,000 BABIES BORN EACH YEAR WITH CDH. Over 26,000 do not survive. Help CHERUBS fight CDH.

    Over a half million babies have been affected by Congenital Diaphragmatic Hernia since 2000. This means that over a quarter of a million babies have been lost to this devastating birth defect. Over 800 babies are lost to CDH in the United States alone each year.

    CHERUBS has participated in NCMD for over a decade. We remember all the families who mourn their children from Congenital Diaphragmatic and those who mourn their children lost from other circumstances.

    This week our web site home page will go black in memory of those cherubs lost as we list every child in membership lost to CDH. It remains this way until December 14th. This is our solemn tribute to those cherubs with wings as well as our way to bring awareness to the many children lost to CDH.

    If you would like your cherub's name added or removed, please e-mail us at login@cherubs-cdh.org Members names will automatically be included. Please contact us if you do not want your cherub's name listed. Please make sure to have your membership form (profile) updated with your cherub's name and status if you have recently lost your cherubs.

    This year we are doing something to raise more funds for the cause. Every cherub has 1 candle lit beside his/her name. Family and friends can light more candles in his / her memory. Please make sure to give us the cherub's name as you donate.

    Every $5.00 donated in memory of cherub lights another candle beside his/her name.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  2. #2
    This is such a wonderful memorial tribute!
    Monica- Mom of Sammy 8/20/14-9/1/14. Sammy is our first child. LCDH diagnosed at 19 weeks. ECMO, dialysis, EEG, two circuit changes for ECMO. Sammy was surrounded by family and knew he was loved. He looked exactly like my husband! Missing my little Sammy every day.

  3. #3
    Love this idea! <3
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member

    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org

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