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Thread: Elijah's journey of CDH and Dextrocardia

  1. #1

    Red face Elijah's journey of CDH and Dextrocardia

    Hi everyone I'm new to this site thanks to Tracy...My son is diagnosed with CDH n Dextrocardia which tore me apart but I thank God for giving me such a blessing and I value life much more and I enjoy every moment I get to spend with my son

  2. #2
    Hi Carmen, welcome to Cherubs. If you have any questions or just want support we will be here for you and Elijah. Sending strength and prayers for you and your baby boy.
    Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.

  3. #3
    Welcome to cherubs. Prayers for your family and Elijah.
    Laura Henderson
    Missouri State Representative
    Mom to Lucie, LCDH survivor

  4. #4
    Glad you logged in and figured out how to post! We are here for you, (((HUGS))). Praying for Elijah and you.

    How is Elijah doing today?
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

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