Hi - looking to talk to anyone else who was diagnosed as an adult. I recently turned 45 and the same week was diagnosed with a morgagni hernia. I'm feeling pretty lost right now! Doesn't seem to be many of us out there. I've met a few on the facebook groups. My main issue right now is trying to find a doctor. I live in the Philadelphia, PA area and I thought with all the great hospitals here it would be easy. But, I'm finding that not to be the case.

If anyone has any recommendations in or near Philadelphia (or even close cities/states) for a doctor who is experienced in adult CDH, please let me know.

Thanks!

Sara F.