Awesome Kiyari is up there with her big smile!
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Awesome Kiyari is up there with her big smile!
Melissa- mother of Kiyari Juliet born 7/06/2008- LCDH and big sister Daliah Jolie born 10/24/2006- 30 weeks premie. Vent- c-pap- nasal cannula. First surgery 10 days- on ECMO three weeks- second surgery at six months- Fundo- NJ- mickey button- cardio cath-lab at 8 months- spent nine months at Rady's Children Hospital NICU in San Diego-California. Came home on March 31st 2009 on nasal cannula- low flow- 100% oxygen and GT feedings- interested in food- but unable to swallow it. Cardio cath lab 3/2009- 8/20/09 and 2/9/10(Finally closed PDA)- 3/2/10 complication with pressures- 3/5/10 plug removed- PDA open again. Broviac 8/21/09- 12/3/09(came out- replaced)- 2/16/10(replaced again)- and 5/12/10 (repaired). Severe Pulmonary Hypertension- on Sildenifil- Bosentin- and Remodulin to treat it. Kiyari is a happy girl- loves to sing- dance and play peek-a-boo! Some language delays- but catching up!
they all look great
please dont forget about Adrian for next time
thanks......
~Jenn~ proud mommy to Adrian; LCDH diagnosed in utero- repair at 10 days old while on ECMO. 11 days on ECMO- 12 days on the Vent and 36 days with oxygen. 5 weeks at Children's Boston and another 5 weeks for recovery in our local hospital Hasbro. Spent 72 days away from home. At 5 months old AD had a stroke due to ECMO; no complications with that- went home after 7 days with meds. Currently a happy 1-year-old; when you look at him you wouldn't know all this happened... : ) Also proud mom to 6-year-old Damian http://i45.photobucket.com/albums/f8...iveraSmall.jpg
Love it -- as always great job
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