Was a nice surprise to see Gabriel and Shaddel on the header! Shaddel thinks it's pretty special!! Thanks for adding them - it looks great.
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Was a nice surprise to see Gabriel and Shaddel on the header! Shaddel thinks it's pretty special!! Thanks for adding them - it looks great.
Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
Look at Gabriel!!!!!
Great avatar Jaana!!!!!!!!!
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Thanks Steph! I am wondering how the birthday party went?? (I already know it would have rocked!)
Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
Our header has been updated!
Top row of cherubs:
Rebecca Reid
Liam Knott and his big sis
Jaydee Griffith
Haylee Ginns
Gunnar Grubbs Kelley
Ethan English
Angelina Decker and her little sister
Braden Holt
Colton Crum
Serra Golden
Grayton Creekbaum
Jack Gillham
Second Row:
Jordan Redman
Savanna Davidson
Noah Polaska
Jayden Valasek
Juan Pablo Lopez Arce
Amaiya Thompson
Aiden Bostwick
Matthew Kennedy
Sade H.
Lily Golding
Brianna Mills
Soroya Stevenson Haye
If you want us to feature your cherub make sure that you submit his / her photo to our main albums (Survivor and Non-Survivor). This is also where we will be pulling photos for the calendar and yearbook!
You might have also noticed that our web site colors have changed. Our marketing guru suggested that we go back to baby colors since CDH is a birth defect and the ribbon is pastel. So we're giving it a try! What do you all think?
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I like the new colors and headers
Elaine- mom to Kristin 22- LCDH- nissen- ASD- oxygen till 2 1/2- g-tube till 4 1/2- bowel obstruction at 14 yrs old- only one lung. Also mom to Brittany 18- no CDH just 2 mths premie.
I love the changes!
cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
I like the pastels-but the words in pink make them very hard to read.
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
Love the new changes, especially the colors!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Thanks for including Liam and Chelsea-Rose
xxxx
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
I love it Dawn, you should have seen Bec's smile when I showed her, her picture! Thankyou soooo much!!
Maryanne (mum to Rebecca born 11/11/02 with LCDH)
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